Table 2.

Main themes and subthemes.

Main themes	Subthemes
Parents’ and others’ reactions to the child’s difference	There is something wrong with my baby Perceived stigma
Experiences with healthcare services	Lack of knowledge among healthcare professionals and allied caretakers Lack of guidance and holistic follow-up Hampered communication with healthcare professionals
It’s all about skin care	Touching the skin Lubrication and exfoliation Itching and pain Extensive planning Financial and time burdens
Impact on relationships	Closeness and emotional attachment Lack of privacy Siblings and family planning Hampered communication with partners