Table 1.

Baseline characteristics of all patients with IBD without recent hospitalization at time of baseline survey (B)

Characteristics	All patients (n = 7,902)	Patients who were not hospitalized (n = 6,525)	Patients who were hospitalized (n = 1,377)	p-value
Demographics
Age (years)	45.5 ± 15.3	45.5 ± 15.2	45.7 ± 16.1	0.66
Age at diagnosis (years)	30.1 ± 13.8	30.5 ± 13.8	28.2 ± 13.4	<0.01
Women (%)	72.2%	71.9%	73.8%	0.16
BMI – median (range)	24.4 (21.7 – 28.3)	24.5 (21.9 – 28.3)	23.9 (21.2 – 27.9)	<0.01
Disease duration (years) – median (range)	12 (5 – 23)	11 (5 – 22)	13 (7 – 27)	<0.01
Education (% >college)	92.6%	92.8%	91.4%	0.09
Ethnicity
• White	87.1%	86.8%	88.2%	0.69
• Hispanic	1.5%	1.6%	1.2%
• Black	1.3%	1.4%	1.3%
• Asian	1.1%	1.2%	0.9%
• Other	9.0%	9.1%	8.3%
Smoking (current, % yes)	34.0%	34.0%	33.7%	0.83
History of hospitalization (%)	58.6%	55.5%	73.3%	<0.01
History of bowel surgery (%)	36.6%	33.5%	51.2%	<0.01
Patients with recent bowel surgery since the last survey	3.2%	2.9%	4.5%	0.002
Proportion with Crohn’s Disease	63.4%	60.8%	75.7%	<0.01
Disease Activity
SCCAI (UC patients only)	3.3 ± 2.7	3.1 ± 2.5	4.9 ± 3.5	<0.01
Clinical remission in UC patients (SCCAI 4 or less; %)	23.7%	26.6%	10.0%	<0.01
SCDAI (CD patients only)	140.7 ± 92.1	130.4 ± 84.3	183.1 ± 109.2	<0.01
Clinical remission in CD patients (SCDAI 150 or less; %)	31.9%	33.4%	24.6%	<0.01
Current Medications
Narcotics	9.8%	8.4%	16.3%	<0.01
Biologics	36.0%	33.9%	46.1%	<0.01
Steroids	16.9%	14.9%	26.3%	<0.01
Immunomodulator	27.5%	27.6%	26.8%	0.53
5-ASA	45.2%	47.5%	34.1%	<0.01
Healthcare Utilization
Number of primary care visits
• Never	11.8%	11.5%	13.4%	0.02
• 1 or 2 times	55.6%	56.3%	52.2%
• 3 or more times	32.6%	32.3%	34.4%
Number of gastroenterology visits
• Never	9.4%	9.7%	7.8%	<0.01
• 1 or 2 times	49.9%	50.7%	45.9%
• 3 or more times	40.8%	39.6%	46.2%
PROMIS Measures
Anxiety	52.5 ± 9.4	52.3 ± 9.3	53.8 ± 9.7	<0.01
Depression	50.5 ± 9.1	50.2 ± 9.0	52.1 ± 9.5	<0.01
Fatigue	54.6 ± 10.8	54.0 ± 10.7	57.6 ± 10.9	<0.01
Sleep disturbance	51.4 ± 8.3	51.0 ± 8.3	53.0 ± 8.4	<0.01
Participation in social roles and activities domain	48.8 ± 9.7	49.4 ± 9.6	46.2 ± 9.9	<0.01
Pain interference	51.7 ± 9.7	51.0 ± 9.5	54.7 ± 10.1	<0.01