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. 2022 Apr 7;17(4):e0266569. doi: 10.1371/journal.pone.0266569

Table 1. List of the 27 preliminary QIs reviewed by the expert panel, how they relate to the 6 themes identified in Phase I and which interRAI assessment can be used to generate the QI.

Name and brief description of each theme and QIs that relate to that theme Failure to Improve Follow-up prevalence
1. Access to care: coordination/continuity of care, access to care providers, access to services at the appropriate time
Prevalence of emergency department visitsa,b X
Prevalence of hospital admissionsa,b X
2. Patient care: Discussion of preferred setting of death across the illness trajectory, advanced goals/care planning
Prevalence of clients feeling that progress is not being made regarding completion of personal goalsb X
Prevalence of no advance directivesb X
Prevalence of clients feeling a lack of completion of financial, legal and other formal responsibilitiesb X
3. Caregiver support: How to cope with distress/burden/loneliness, education for caregivers/knowledge to keep client at home, caregiver supports (networks, respite)
Prevalence of caregiver distressa,b X
4. Symptom management: Treating symptoms and also having a patient-centred approach to care
 Prevalence of fallsa,b X
 Prevalence of severe or excruciating daily paina,b X
 Prevalence of pain that is not controlled by medicationsa,b X
 Failure for pain to improvea,b X
 Prevalence of constipationa,b X
 Prevalence of shortness of breath at resta,b X
 Prevalence of shortness of breath upon exertiona,b X
 Failure for shortness of breath to improvea,b X
 Prevalence of stasis/pressure ulcersa,b X
 Prevalence of a delirium-like syndromea,b X
 Prevalence of nausea or vomitinga,b X
 Prevalence of fatiguea,b X
 Prevalence of sleep problemsa,b X
 Prevalence of poor self-reported healtha,b X
 Prevalence of negative mooda,b X
 Failure for negative mood to improvea,b X
 Prevalence of declining social activities that causes distressa X
 Prevalence of lonelinessa X
 Prevalence of anxious complaintsa,b X
5. Spiritual care: Patient and their family should be provided resources and have access to spiritual care
 Prevalence of struggling with the meaning of lifeb X
 Prevalence of wanting to die nowb X
6. Home as the preferred place of death: no QIs could be created to address this theme

a indicates a QI that can be generated with the interRAI HC data

b indicates a QI that can be generated with the interRAI PC data