1. List of Outcome Measures focusing on goals at the levels of impairment, disability.
Outcome at the level | Outcome Measures |
Impairment and symptoms |
Motor
Amended Motor Club Assessment
(AMCA)
Expanded Disability status scale (EDSS) Functional Assessment in Multiple Sclerosis (FAMS) Multiple Sclerosis Impairment Scale (MSIS) Cognitive Hopkins Verbal Learning Test (HVL) Mini‐mental state examination (MMSE) Symptoms Beck Depression Inventory (BDI) Clinical depression questionnaire (CDQ) Fatigue Frequency MS symptom checklist composite score Self‐reported relapses State trait anxiety inventory (STAI) State trait anger expression inventory(STAXI) Bladder American Urological Association Symptom Index (AUA) |
Activity limitation | Barthel index (BI)
Fatigue severity scale (FSS) Functional Independence Measure (FIM) Functional Assessment Scale (RIC FAS) Guy's Neurological Disability Scale (GNDS) General Health Questionnaire (GHQ28) Incapacity Status Scale (ISS) Nine‐Hole Peg Test (9HPT) Rehabilitation Institute of Chicago Timed 10‐metre Walking Test (TW10) Visual Analogue Scales (VAS) Bladder Neurological Disability Scale (NDS) Urogenital Distress Inventory (UDI6) |
Participation |
Quality of Life
Fatigue impact scale (FIS) General Health Questionnaire (GHQ28) Multiple Sclerosis Quality‐of‐Life Questionnaire (MS QOL) Multiple Sclerosis Impact Scale (MSIS29) Life Appreciation and Satisfaction Questionnaire (LASQ) Perceived Deficits Questionnaire (PDQ) 36 item Short Form Health Survey Questionnaire (SF36) Social Barriers to Health Promoting Activities for Disabled Persons Scale (BHPADPS) Employment Health Promoting Lifestyle Profile II (HPLP‐II) Human Activity Profile (HAP) London Handicap Scale (LHS) Personal Resource Questionnaire (PRQ) Questionnaire on Resources and Stress (QRS) Revised UCLA Loneliness Scale Sickness Impact Profile (SIP) Self‐Rated Abilities for Health Practices scale (SRAHP) Tempelar Social Experience Checklist (SET) Bladder Incontinence Impact Questionnaire (IIQ7) |
Other | Discharge destination (home/ institution) Drug Management Cost of care Hospital length of stay or treatment Hours of home assistance Qualitative final programme evaluation Satisfaction with care/services Timeliness of health care |