Table 1.
Demographic Information for the Overall Sample and Each Subsample
| Demographic | Overall sample (N = 505) | EFA sample (n = 193) | CFA sample (n = 312) | Test/retest sample (n = 426) |
|---|---|---|---|---|
| Age | ||||
| Range | 17–77 | 17–77 | 18–76 | 16–77 |
| Mean (SD) | 41.4 (13.7) | 41.4 (13.6) | 41.5 (13.9) | 42.63 (13.9) |
| Gender, n (%) | ||||
| Female | 278 (55.0) | 101 (52.3) | 177 (56.7) | 222 (52.1) |
| Male | 210 (46.6) | 83 (43.0) | 127 (40.7) | 189 (44.4) |
| Other | 15 (3.0) | 7 (3.6) | 8 (2.6) | 11 (2.6) |
| Rather not say | 2 (0.4) | 2 (1.0) | 0 (0.0) | 4 (0.9) |
| Ethnicity, n (%) | ||||
| White | 468 (92.6) | 180 (93.2) | 288 (92.3) | 387 (91.1) |
| Black | 1 (0.2) | 0 (0.0) | 1 (0.3) | 1 (0.2) |
| Asian | 1 (0.2) | 1 (0.5) | 0 (0.0) | 2 (0.4) |
| Mixed race | 9 (1.8) | 3 (1.6) | 6 (1.9) | 9 (2.1) |
| Other/rather not say | 26 (5.2) | 9 (4.7) | 17 (5.5) | 27 (6.2) |
| ASD diagnosis, n (%) | ||||
| Formal diagnosis | 457 (90.5) | 175 (90.7) | 362 (93.4) | 382 (89.7) |
| Self-diagnosed/awaiting diagnosis/other | 48 (9.5) | 18 (9.3) | 30 (7.6) | 44 (10.3) |
| Mean SRS-2 total score (SD)a | 106.5 (24.0) | 105.6 (24.7) | 106.5 (23.7) | 106.2 (23.9) |
| Support completing questionnaires when registered with ASC-UK? n (%) | ||||
| Without support | 432 (85.5) | 162 (83.9) | 270 (86.5) | 370 (86.9) |
| With support | 68 (13.5) | 31 (16.1) | 37 (11.9) | 51 (12.0) |
| Missing response | 5 (1.0) | 0 (0.0) | 5 (1.6) | 5 (1.1) |
| Employment, n (%) | ||||
| Paid employment or retired | 297 (58.8) | 115 (59.6) | 197 (63.1) | 225 (52.8) |
| Not in paid employment | 208 (41.2) | 78 (40.4) | 115 (36.9) | 201 (47.2) |
| Highest qualification, n (%) | ||||
| GCSE or below | 153 (30.3) | 59 (30.6) | 93 (29.8) | 128 (30.0) |
| Postschool qualification (e.g., A-level) but not degree | 135 (26.7) | 54 (28.0) | 82 (26.3) | 116 (27.2) |
| University education (e.g., bachelors or above) | 217 (43.0) | 80 (41.4) | 137 (43.9) | 182 (42.8) |
| Anxiety diagnoses (self-reported), n (%) | ||||
| Formally diagnosed | 355 (71.3) | 128 (66.3) | 227 (72.8) | 230 (54.0) |
| Suspected | 150 (29.7) | 65 (33.7) | 85 (27.2) | 196 (46.0) |
a
Raw scores ≥68 on the SRS-2 are indicative of clinically significant autism characteristics associated with functional impairment. The mean SRS-2 scores in the overall sample and each subset are in the borderline range between “moderate” and “severe” autism characteristics and functional impairment.
ASC-UK, Autism Spectrum Cohort-UK; CFA, confirmatory factor analysis; EFA, exploratory factor analysis; GCSE, General Certificate of Secondary Education: SRS-2, Social Responsiveness Scale-Version2.