TABLE 2.
Characteristics of the self-care measurement tools retrieved from this review.
| Name of the measurement tool, Original/Adapted | Author and Year | Description of the tool or subscale | N. Included items | Languages | Complete tool or dimension | Target population and Chronic condition | Patient age (year) | Administration method | Conceptual model |
| Family Asthma Management System Scale (FAMSS) Original |
Klinnert et al. (52) | The FAMSS evaluates the effectiveness of the family asthma management system. | 11 subscales | English | 4/11 dimensions: Adherence with asthma medications, Adherence with environmental recommendations, Assessment of child’s symptoms, Appropriateness of action plan and emotional response to asthma symptoms | Parents of children with asthma | 6–9 | Administered by research assistants | Family asthma management system |
| Self-Care Independence Scale (SCIS) Original |
Patton et al. (38) | The SCIS evaluates children’s level of independence in their cystic fibrosis treatment. | 44 | English | Complete scale | Parents of children with cystic fibrosis | 4–17 | Self-reported | NR |
| Self-Management of Type 1 Diabetes in Adolescence (the SMOD-A) Original |
Schilling et al. (49)† | The SMOD-A evaluates self-management in youths with type 1 diabetes. | 33 | English/Chinese‡ | Complete scale | Patients with type 1 diabetes | 13–21 | Self-reported | NR |
| Pediatric Epilepsy Medication Self-Management Questionnaire (PEMSQ) Original |
Modi et al. (50) | The PEMSQ evaluates medication self-management in children with epilepsy. | 15 of 27 | English/Malay§ | 2/4 dimensions: Adherence to medications and clinical appointments, Barriers to treatment | Parents of children with epilepsy | 2-14 | Self-reported | NR |
| Adherence Schedule in Transplantation-Proxy Child (ASiT-PC) Original |
Giardini et al. (62) | The ASiT-PC evaluates the cognitive relational antecedents of adherence to treatment and the self-efficacy in disease management in patients before and after transplantation. | 11 | Italian¶ | Complete scale | Parents of children, solid-organ pre and post-transplant recipients | NR | Self-reported | NR |
| Transition Readiness Assessment Questionnaire (TRAQ) Original |
Sawicki et al. (65)mm | The TRAQ evaluates readiness for healthcare transition among youth with special healthcare needs. | 20 | English/German* | Complete scale | Patients with special health care needs and their parents | 16–26 | Self-reported | Transtheoretical model |
| (UNC) TR(x)ANSITION Scale Original | Ferris et al. (56)# | The (UNC) TR(x)ANSITION Scale evaluates self-management and health care transition skills in adolescents and young adults with chronic conditions. | 13 of 33 | English/Spanish◆ | 3/10 dimensions: Adherence, Nutrition, Self-management skills | Patients with chronic conditions | 12–22 | Administered by the transition coordinator through an interview | A report of academy of science and self-determination theory |
| Successful Transition to Adulthood with Therapeutics = Rx (STARx) Questionnaire Original | Ferris et al. (29)° | The STARx questionnaire evaluates health transition readiness in young people with chronic diseases. | 9 of 18 | English/Chinese■ | Section 1 of 3 |
Patients with chronic conditions | 8–25 | Administered individually online | NR |
| ON Taking Responsibility for Adolescent/Adult Care (ON TRAC) Adapted from Williams et al. (92) |
Moynihan et al. (58) | The revised ON TRAC evaluates youths’ capabilities in performing life skills required to actively participate in their health care and function independently as adults. | 25 | English | Complete scale | Patients with chronic conditions | 12–19 | NR | Holistic model |
| The Parent STARx Questionnaire (STARx-P) Adapted from Ferris et al. (29) |
Nazareth et al. (59) | The STARx-P Questionnaire evaluates parents’ perspective on their child’s health care transition readiness. |
5 of 18 | English | 1/3 dimension: self-management | Parents of children with chronic conditions | 6–17 | Self-reported, online | NR |
| Adolescent Self-Management and Independence Scale II (AMIS II) Original |
Sawin et al. (46) | The AMIS II evaluates the adolescent’s increasing responsibility for and implementation of self-management behaviors. | 5 of 17 | English | 2/8 dimensions: Self-management medications, Preventing complications | Patients with spina bifida and their parents | 12–25 | Structured interview rated by healthcare providers | NR |
†The same scale is used by Karahroudy et al. (48) (Author of included study); ‡The Chinese version is C-SMODA by Guo et al. (47) (included study); §The Malay version is by Tan et al. (51) (included studies); ¶Translated in English; The same scale is also used by Sawicki et al. (60) (included study); *The German version is TRAQ G.V 15 by Culen et al. (55); #The same scale is also used by Shackleford et al. (40) and Zhong et al. (61) (included studies); °The same scale is used by Cohen et al. (54) ◆ The Spanish version is C TRxANSITION Scale™ Version 3 by Cantú-Quintanilla et al. (53) (included study); ◼ The Chinese version is by Sheng et al. (2) and Ma et al. (57) (included studies).