Table 1.
Participant characteristics.
Extensive survey (n = 19) |
Interview (n = 10) |
||
---|---|---|---|
Caregivers | N (=10) | N (=7) | |
Gender | Male | 5 | 4 |
Female | 5 | 3 | |
Age | 30–39 years | 2 | 1 |
40–49 years | 0 | 0 | |
50–59 years | 4 | 3 | |
60–65 years | 2 | 1 | |
>65 years | 2 | 2 | |
Relationship to person with dementia | Spouse | 6 | 4 |
Brother/sister | 2 | 2 | |
Father/mother (in-law) | 1 | 1 | |
Not specified | 1 | 0 | |
Diagnosis of the person with dementia | Alzheimer's dementia | 6 | 4 |
Frontotemporal dementia | 2 | 2 | |
Not specified | 2 | 1 | |
Years since diagnosis | <3 years | 2 | 1 |
3–5 years | 4 | 4 | |
>5 years | 2 | 1 | |
Not specified | 2 | 1 | |
Healthcare professionals | N (=6) | N (=2) | |
Gender | Male | 0 | 0 |
Female | 5 | 2 | |
Not specified | 1 | 0 | |
Age | 40–49 years | 1 | 0 |
50–59 years | 2 | 1 | |
60–65 years | 2 | 1 | |
> 65 years | 1 | 0 | |
Background | Case manager | 2 | 0 |
Dementia care coordinator | 1 | 1 | |
Dementia counselor | 2 | 1 | |
Volunteer | 1 | 0 | |
Other | N (=3) | N (=1) | |
Gender | Male | 0 | 0 |
Female | 3 | 1 | |
Age | 40–49 years | 1 | 0 |
50–59 years | 2 | 1 | |
Background | Both caregiver and healthcare professional | 1 | 0 |
Person with Alzheimer's dementia | 1 | 1 | |
Not specified | 1 | 0 |