1.1 Results of treatment procedure postponement |
“Oh, it's pretty hard, pretty hard with this shunt being clogged. It's hard to walk. My memory is not very good. I keep forgetting things. It's getting worse and my balance is really bad. I keep forgetting things. I have to be so careful when I'm walking around in the kitchen. I don't walk an awful lot. I sit in the chair for the better part of the day and the better part of the evening.” (Participant 611) |
“All the tests that I couldn't have done - that's been the hardest part of all this. Some days are better than others, but it's horrible.” (Participant 635) |
“Things [symptoms] are all coming back after my surgery and I'm not allowed to be assessed because I'm not a life-or-death situation. So I can't go in and be reassessed to find out what's going on in my brain. The surgery didn't work and I have to wait ‘till this is all over to know what's going on in my brain. I'm frustrated. I'm, I'm angry. I want to know what's going on. My health is in jeopardy here, right?” (Participant 616) |
1.2 Results of appointment changes |
“We do telephone things with our family doctor now, and she can assess us over the telephone. And it was me that was the problem. Because I was having some breathing issues, which had nothing to do with COVID. But I couldn't get her to listen to my chest or anything. I had an ear infection and she couldn't look in my ear because she can't do that over the telephone.” (Participant 634) |
“They just would phone and ask me some questions, but it wasn't done where they could see me or I could see them. It was okay to do it that way, other than the fact that they couldn't see me. So that would be my biggest concern, you know, I'd [like to] see just how much I've, um… regressed.” (Participant 609) |
“Well, I wouldn't be happy if they couldn't assess me over the phone in terms of driving, or if they were just to say that I couldn't drive. The only outcome that I want from a virtual meeting is that yes I can drive.” (Participant 602) |