Table 2.
Description of circumstances and care provided and its evaluation by bereaved relatives. a
| Home (n = 68) | Hospital (n = 114) | Nursing home (n = 176) | Hospice (n = 35) | p-value | |
|---|---|---|---|---|---|
| n (%) | n (%) | n (%) | n (%) | ||
| Care characteristics | |||||
| Sufficient medical care b | 49 (73.1) | 90 (78.9) | 96 (54.5) | 23 (65.7) | 0.000 |
| Sufficient nursing care | 42 (63.6) | 86 (75.4) | 114 (64.8) | 23 (65.7) | 0.223 |
| Sufficient personal care | 44 (65.7) | 81 (71.7) | 108 (61.7) | 24 (68.6) | 0.422 |
| Sufficient attention for spiritual needs | 21 (33.3) | 43 (39.8) | 57 (33.5) | 16 (45.7) | 0.438 |
| Sufficient emotional support forrelatives | 44 (67.7) | 74 (66.7) | 71 (40.3) | 22 (62.9) | 0.037 |
| Circumstances | |||||
| Being involved in care and treatment decisions | |||||
| Very involved | 38 (56.7) | 52 (46.0) | 66 (37.5) | 14 (40.0) | 0.084 |
| Moderately involved | 12 (17.9) | 26 (23.0) | 57 (32.4) | 13 (37.1) | |
| Not involved | 17 (25.4) | 35 (31.0) | 53 (30.1) | 8 (22.9) | |
| Relatives were told that death was near | |||||
| Yes | 52 (80.0) | 88 (77.2) | 138 (80.2) | 32 (91.4) | 0.328 |
| No | 13 (20.0) | 26 (22.8) | 34 (19.8) | 3 (8.6) | |
| Relatives were explained what to expect of the moment of death | |||||
| Yes | 30 (46.9) | 53 (47.3) | 58 (33.9) | 20 (57.1) | 0.020 |
| No | 34 (53.1) | 59 (52.7) | 113 (66.1) | 15 (42.9) | |
| Died at the appropriate place | |||||
| Yes | 62 (93.9) | 67 (59.8) | 117 (68.4) | 25 (71.4) | 0.000 |
| No | 1 (1.5) | 17 (15.2) | 27 (15.8) | 5 (14.3) | |
| Hesitant | 3 (4.4) | 17 (15.2) | 17 (9.9) | 2 (5.7) | |
| Don’t know | 0 | 11 (9.8) | 10 (5.8) | 3 (8.6) | |
| Restrictions | |||||
| Visitors allowed in last two days | |||||
| Yes, without restrictions | 31 (48.4) | 27 (23.7) | 18 (10.3) | 10 (28.6) | 0.000 |
| Yes, with restrictions | 23 (35.9) | 63 (55.3) | 118 (67.8) | 19 (54.3) | |
| No | 10 (15.6) | 24 (21.1) | 38 (21.8) | 6 (17.1) | |
| Relatives allowed to help with care after death | |||||
| Yes | 34 (52.3) | 21 (18.6) | 39 (22.9) | 16 (45.7) | 0.000 |
| No | 21 (32.3) | 67 (59.3) | 109 (64.1) | 13 (37.1) | |
| Don’t know | 10 (15.4) | 25 (22.1) | 22 (12.9) | 6 (17.1) | |
| Care or treatment restricted due to COVID-19 pandemic | |||||
| No | 36 (54.5) | 52 (46.0) | 52 (29.5) | 17 (48.6) | 0.003 |
| Yes | 26 (39.4) | 51 (45.1) | 114 (64.8) | 17 (48.6) | |
| Don’t know | 4 (6.1) | 10 (8.8) | 10 (5.7) | 1 (2.9) | |
Missing observations: sufficient medical care 4, sufficient nursing care 2, sufficient personal care 2, sufficient attention for spiritual needs 17, sufficient emotional support for relatives 11, being involved in care and treatment decisions 2, relatives were told that death was near 7, relatives were told what to expect of the moment of death 11, died at the appropriate place 9, visitors allowed in last 2 days 6, relatives allowed to help with care after death 10, care of treatment restricted 3.
Care is considered sufficient when the respondent indicated to agree or strongly agree with a statement that it was sufficient.
P-values marked with bold indicate statistically significant differences between settings.