Table 3.

Thirteen new Standard and Norm statements not in original 2009 recommendations.

Section	Question no	Statement	Description	Round attained consensus	Results
					Agree	Neutral	Disagree	Don’t know
Section III: Levels of Palliative Care	22	Definition of Geriatric Palliative Care	Geriatric Palliative Care (GPC) has recently been identified and defined as ‘. . .a field of interspecialty collaboration unifying competences from geriatric medicine and palliative care to respond to the socio-demographic changes and challenges of older adults with severe and life-limiting conditions’. * Geriatric palliative care should be part of the responsibility of both palliative and geriatric care specialties. * Voumard, R., Rubli Truchard, E., Benaroyo, L. et al. Geriatric palliative care: a view of its concept, challenges and strategies. BMC Geriatr 18, 220 (2018). https://doi.org/10.1186/s12877-018-0914-0	2	89	0	11	0
	23	Dementia Palliative Care	Caring for a person at the end of life who has dementia can be complex and patients and families may need palliative care specific to dementia. The EAPC have attained consensus on eleven important components needed for optimal palliative care in older people with Dementia*. Caring for palliative dementia patients can be challenging, and sometimes specialist dementia palliative care input is required. * van der Steen JT, Radbruch L, Hertogh CM, et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2014;28(3):197-209. doi:10.1177/0269216313493685	2	87	0	8	5
	35	Children and adolescents: Palliative Care for neonates a closely related field	Palliative care for neonates represents a special, albeit closely related field to paediatric palliative care.	1	86	9	0	5
	36	Perinatal Palliative Care	General care designed not only to minimise pain in neonates but also to make them more comfortable, promote individualised developmental care [6] and facilitate bonding with the mother are critical components of perinatal palliative care	1	79	9	0	12
	37	Early initiation of perinatal palliative care	Early initiation, starting from diagnosis, of perinatal palliative care is important to parents who must cope with a tragic prenatal diagnosis.	1	81	7	0	12
	38	Perinatal Palliative Care can be provided in existing settings	Services can be provided in existing settings, including specialist settings, and should focus on the needs of the foetus, mother and the psychological, spiritual and social needs of the whole family.	1	79	9	0	12
Section IV: Palliative Care Delivery	40	Access to services: Information directory	People should have access to a national directory of information on palliative care providers, local caregivers and other relevant organisations that can have a role in palliative care.	1	98	2	0	0
	41	Access to services: Websites	All palliative care services should have a website	1	91	7	2	0
Section V: Palliative Care Services	141	Guidelines in all settings: opening hours	There should be unrestricted open hours for the family and friends of dying patients.	1	100	0	0	0
	142	Guidelines in all settings: access to opioids and other essential medicines	There should be access to opioids and other essential medicines routinely used in palliative care in all settings.	1	97	3	0	0
	143	Guidelines in all settings: information exchange across caregivers, disciplines and settings	There should be a process to support the exchange of information across caregivers, disciplines and settings.	1	95	5	0	0
	144	Guidelines in all settings: digital medical records	There should be a digital medical record, to which all professional caregivers involved in the care of palliative care patients have access within one setting.	1	97	3	0	0
	145	Guidelines in all settings: availability of specialist equipment in all settings	Specialist equipment (e.g. anti-decubitus mattresses, aspiration material, stoma care, oxygen delivery, special drug hospital beds) should be available for the care of palliative care patients in each specific setting.	1	100	0	0	0