Table 3.
Clinical Characteristics & Phenotype of IBD Participants
| No. participants | 3029 |
|---|---|
| Age at time of enrollment in years (Range / Median) | 18–89/39 |
| Race | |
| White (%) | 2341 (77.3) |
| Black (%) | 186 (6.1) |
| Asian (%) | 39 (1.3) |
| American Indian or Alaska Native | 6 (0.2) |
| Other (%) | 42 (1.4) |
| Unknown (%) | 415 (13.7) |
| Ethnicity | |
| Hispanic or Latino (%) | 49 (1.6) |
| Non-Hispanic or Latino (%) | 2513 (83) |
| Unknown (%) | 467 (15.4) |
| Sex | |
| Male (%) | 1351 (44.6) |
| Female (%) | 1678 (55.4) |
| Diagnosis | |
| Crohn’s disease (%) | 2003 (66.1) |
| Ulcerative colitis (%) | 974 (32.2) |
| IBD-U (%) | 52 (1.7) |
| Age of diagnosis (Range / Median) | 1–79/25 |
| Disease duration at enrollment (years; Range / Median) | 0–77/12 |
| Disease behavior (CD) | |
| B1 Inflammatory, nonstricturing, nonpenetrating (%) | 661 (33) |
| B2 Stricturing (%) | 465 (23.2) |
| B3 Penetrating (%) | 266 (13.3) |
| Both stricturing and penetrating | 201 (10) |
| Unknown (%) | 410 (20.5) |
| Perianal disease | 461 (23) |
| Disease location (CD) | |
| L1 Ileal | 439 (21.9) |
| L2 Colonic | 268 (13.4) |
| L3 Ileocolonic | 894 (44.6) |
| L4 Upper track | 142 (7.1) |
| Unknown | 396 (19.8) |
| Disease extent (UC) | |
| E1 Ulcerative proctitis | 76 (7.8) |
| E2 Left-sided ulcerative colitis | 191 (19.6) |
| E3 Extensive ulcerative colitis | 74 (7.6) |
| Unknown | 209 (21.5) |
| Pancolitis | 424 (43.5) |
| History of IBD related Surgery | 582 (19.2) |
| Tobacco use (%) n = 2355 | 296 (12.6) |