Table 2.

List of instruments included in the Registry dedicated to patients with Still's disease, with the corresponding number of common data elements, the phase (i.e., retrospective/prospective) at which they should refer to and the number of mandatory variables included.

Instruments	Variables	Retrospective/prospective phase	N. of mandatory variables
Demographics	11	Retrospective phase	4
Consents	4	Retrospective phase	1
Diagnostic data and family history	25	Retrospective phase	2
Clinical and laboratory features of Still's disease	160	Retrospective phase	0
Clinical diagnostic scores and criteria	16	Retrospective phase	1
Cardiovascular risk	24	Retrospective/prospective phase	2
Past and current treatments	1	Retrospective/prospective phase	0
Corticosteroids as monotherapy/main therapy—the retrospective phase	227	Retrospective phase	1
Treatment with cDMARDs not associated to biologic agents—the retrospective phase	591	Retrospective phase	6
Treatment with small molecules not associated to biologic agents—the retrospective phase	1048	Retrospective phase	12
Treatment with biotechnological agents—the retrospective phase	1212	Retrospective phase	14
Fertility and pregnancy	14	Retrospective/prospective phase	1
Disease course and treatment during pregnancies	66	Retrospective/prospective phase	1
Follow-up visits: clinical manifestations and treatment—the prospective phase	897	Prospective phase	51