Table 1.
Onset of serious illness |
Near end of life |
|||
---|---|---|---|---|
Patients (N = 6129) | Caregiver/proxy users (N = 148) | Patients (N = 6517) | Caregiver/proxy users (N = 163) | |
Characteristic | ||||
Age,a mean (SD) | 70.4 (14.2) | 59.6 (12.9) | 76.7 (13.7) | 61.0 (13.0) |
Female, % | 56.9 | 75.0 | 49.9 | 77.9 |
Care Group,b % | ||||
Group 2: chronic illness | 15.3 | |||
Group 3: advanced illness | 21.1 | |||
Group 4: frailty and end of life | 100 | 63.6 | ||
Race, % | ||||
American Indian/Alaska Native | 0.9 | 0 | <1.0 | 1.2 |
Asian | 1.9 | 4.7 | 1.4 | 2.5 |
Black or African American | 3.4 | 4.7 | 2.5 | <1.0 |
Native Hawaiian/Pacific Islander | 0.2 | 0 | <1.0 | <1.0 |
White | 81.1 | 79.7 | 83.6 | 81.6 |
Other | 3.6 | 3.4 | 3.3 | 3.7 |
Unknown or not reported | 8.9 | 7.4 | 8.3 | 9.8 |
Hispanic, % | 10.3 | 9.3 | 7.2 | 14.1 |
Portal tool use, mean (SD) | ||||
Care team information | 7.0 (8.7) | 0 (0) | 10.8 (12.0) | 0 (0) |
Cost and coverage | 1.1 (2.6) | 0 (0.09) | 0.9 (2.4) | 0.01 (0.13) |
Health management guides | 2.4 (4.3) | 0.04 (0.47) | 1.4 (3.0) | 0.02 (0.36) |
Laboratory and test results | 11.7 (16.5) | 0.19 (1.94) | 11.4 (16.8) | 0.19 (2.15) |
Medical record | 9.9 (13.4) | 0.12 (1.31) | 4.6 (8.5) | 0.08 (1.26) |
Medications | 11.5 (17.8) | 0.16 (1.99) | 9.4 (16.2) | 0.11 (1.65) |
Recently added (eChat/eVisit) | 25.0 (28.8) | 0.26 (2.83) | 11.2 (19.0) | 0.16 (1.89) |
Patient–provider communication | 24.0 (25.8) | 0.50 (4.50) | 20.8 (25.6) | 0.43 (4.41) |
Visits and appointments | 16.8 (22.4) | 0.34 (3.66) | 13.6 (19.1) | 0.29 (3.53) |
Patient age was calculated at time of Care Group flag for onset of serious illness or at date of death for the near end-of-life cohort. Caregiver age was calculated at the end of the study period.
Care Group flag in the last 12 months of life; if there are multiple flags, the Care Group closest to the time of death is reported.
SD, standard deviation.