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. 2021 Jul 29;44(1):45–52. doi: 10.1177/02537176211029111

Table 3.

The Interpretative Phenomenological Analysis Showing Various Themes of the Lived Experiences of the Siblings

Superordinate Themes Subordinate Themes Subthemes
Processing and understanding the condition Recognition of differences •  Deficits in communication and social interaction (n = 12)
•  Behavioral dysregulation (n = 4)
•  Implicit understanding (n = 2)
Knowledge and awareness •  Lack of awareness (n = 10)
•  Clarity after diagnosis (n = 5)
•  Sources of information (parents (n = 6), professionals (n = 5), books & internet (n = 4)
Developing acceptance •  Process of grief (n = 3)
•  Acceptance (n = 9)
Coping with challenging experiences Nature of challenges •  Emotional (n = 14)
•  Relational (n = 10)
•  Social (n = 12)
Coping with challenges •  Suppression and avoidance (n = 10)
•  Rationalization (n = 6)
•  Normalization (n = 4)
•  Maximizing positives (n = 3)
Current and future roles Supportive and parental role (n = 12) Nil
Anxiety related to future care and plans (n = 12) Nil
Needs and expectations Needs for sibling with ASD •  Independence (n = 6)
•  Achievement (n = 3)
•  Improvement in symptoms (n = 3)
•  Resources (n = 9)
Self-needs •  Understanding (n = 5)
•  Social life (n = 5)
•  Autonomy (n = 2)
•  Emotional support (n = 4)
•  Career (n = 2)
•  Information (n = 4)
•  Attention from parents (n = 3)
•  Typical sibling relationship (n = 5)
Perceptions about and reactions to needs Nil
Support system Individuals in the support system •  Parents (n = 12)
•  Professionals (n = 5)
  Siblings (n = 2)
Perceptions about the support system •  Strong support vs. lack of support (n = 6)
  Barriers to support seeking (n = 8)
Positive aspects of sibling relationship Nature of support •  Practical (n = 10)
•  Financial (n = 4)
•  Emotional (n = 3)
Self-development •  Increased sensitivity and empathy (n = 5)
•  Learning life lessons (n = 3)
  Higher sense of responsibility (n = 3)