Table 3.
Superordinate Themes | Subordinate Themes | Subthemes |
Processing and understanding the condition | Recognition of differences | • Deficits in communication and social interaction
(n = 12) • Behavioral dysregulation (n = 4) • Implicit understanding (n = 2) |
Knowledge and awareness | • Lack of awareness (n = 10) • Clarity after diagnosis (n = 5) • Sources of information (parents (n = 6), professionals (n = 5), books & internet (n = 4) |
|
Developing acceptance | • Process of grief (n = 3) • Acceptance (n = 9) |
|
Coping with challenging experiences | Nature of challenges | • Emotional (n = 14) • Relational (n = 10) • Social (n = 12) |
Coping with challenges | • Suppression and avoidance (n =
10) • Rationalization (n = 6) • Normalization (n = 4) • Maximizing positives (n = 3) |
|
Current and future roles | Supportive and parental role (n = 12) | Nil |
Anxiety related to future care and plans (n = 12) | Nil | |
Needs and expectations | Needs for sibling with ASD | • Independence (n = 6) • Achievement (n = 3) • Improvement in symptoms (n = 3) • Resources (n = 9) |
Self-needs | • Understanding (n = 5) • Social life (n = 5) • Autonomy (n = 2) • Emotional support (n = 4) • Career (n = 2) • Information (n = 4) • Attention from parents (n = 3) • Typical sibling relationship (n = 5) |
|
Perceptions about and reactions to needs | Nil | |
Support system | Individuals in the support system | • Parents (n = 12) • Professionals (n = 5) Siblings (n = 2) |
Perceptions about the support system | • Strong support vs. lack of support (n =
6) Barriers to support seeking (n = 8) |
|
Positive aspects of sibling relationship | Nature of support | • Practical (n = 10) • Financial (n = 4) • Emotional (n = 3) |
Self-development | • Increased sensitivity and empathy (n =
5) • Learning life lessons (n = 3) Higher sense of responsibility (n = 3) |