Table 2.
Characteristics of individual PROMs (n=204) | N | % |
Target age group* | ||
Children or adolescents | 52 | 26 |
Adults or older adults | 152 | 74 |
Type of measure | ||
Generic | 165 | 81 |
Designed for mental health | 39 | 19 |
Main category of outcome measurement | ||
QOL/Well-being | 190 | 93 |
Recovery-specific | 14 | 7 |
Year of development | ||
1960s | 1 | 0 |
1970s | 4 | 2 |
1980s | 16 | 8 |
1990s | 73 | 36 |
2000s | 70 | 34 |
2010s | 40 | 20 |
Region of development | ||
North America | 88 | 43 |
Asia | 6 | 3 |
Europe | 91 | 45 |
Australia | 8 | 4 |
South America | 1 | 0 |
International | 10 | 5 |
Characteristics of individual PROMs or PROM families relevant for MS, MN and MP EEs (n=134) | n | %† |
MP: availability of separate adult and child/adolescents versions | 16 | 12 |
MP: availability of a proxy-completion option | 27 | 20 |
MS: feasibility of assessing outcomes beyond health, that is, capabilities or caregiver, family or social care outcomes | 11 | 8 |
MN: availability of multiple translations (two or more language versions of the instrument) | 97 | 72 |
EE: availability of a value set | 15 | 11 |
MN: availability of value set in more than one country | 9 | 7 |
*If the target demographic group was not stated, the measure was considered designed for adults.
†Characteristics of 88 individual PROMs (one version available) and 116 scales grouped into 46 PROM families (more than one distinct version of the same questionnaire exist).
EE, economic evaluation; MN, multinational; MP, multiperson; MS, multisectoral; PROM, patient-reported outcome measure; QOL, quality of life.