Table 1.
Demographics and burden of endometriosis
| Characteristic | Overall respondents, n (%) (n=743) | LPAF respondents, n (%) (n=589) | NRFP respondents, n (%) (n=556) |
| Age at time of survey, years | |||
| 19–29 | 206 (28) | 179 (30) | 155 (28) |
| 30–39 | 339 (46) | 269 (46) | 259 (47) |
| 40–49 | 180 (24) | 128 (22) | 129 (23) |
| 50 or older | 18 (2) | 13 (2) | 13 (2) |
| Country | |||
| USA (excluding Puerto Rico*) | 474 (64) | 370 (63) | 364 (65) |
| UK | 128 (17) | 102 (17) | 92 (17) |
| Canada | 38 (5) | 32 (5) | 30 (5) |
| Australia | 37 (5) | 31 (5) | 27 (5) |
| South Africa | 20 (3) | 15 (3) | 9 (2) |
| Ireland | 17 (2) | 15 (3) | 12 (2) |
| Other | 15 (2) | 12 (2) | 13 (2) |
| New Zealand | 11 (1) | 9 (2) | 8 (1) |
| The Netherlands | 3 (0.4) | 3 (1) | 1 (<0.1) |
| Level of education | |||
| Some high school or less | 33 (4) | 21 (4) | 20 (4) |
| High school diploma | 111 (15) | 80 (14) | 76 (14) |
| Some college | 214 (29) | 164 (28) | 176 (32) |
| College degree | 254 (34) | 129 (22) | 113 (20) |
| Graduate school/degree | 111 (15) | 59 (10) | 50 (9) |
| Prefer not to answer | 20 (3) | 15 (3) | 10 (2) |
| Endometriosis stage | |||
| Stage 1 | 33 (4) | 24 (4) | 22 (4) |
| Stage 2 | 39 (5) | 28 (5) | 29 (5) |
| Stage 3 | 93 (13) | 70 (12) | 73 (13) |
| Stage 4 | 223 (30) | 191 (32) | 171 (31) |
| Not sure | 355 (48) | 276 (47) | 261 (47) |
| Method of diagnosis | |||
| Laparoscopic surgery | 650 (87) | 518 (88) | 494 (89) |
| Clinical only | 87 (12) | 66 (11) | 57 (10) |
| Not sure | 6 (0.8) | 5 (1) | 5 (1) |
*Patients from Puerto Rico were separated from the US population into the ‘other’ category due to institutional review board exemption qualifications that were different for residents of Puerto Rico vs residents of the 50 states of the USA.
LPAF, less positive about the future; NRFP, not reached their full potential.