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. 2021 Dec 25;9(3):143–152. doi: 10.1016/j.apjon.2021.11.001

Table 1.

Interview topic guide.

Topic guide for parents
  • Can you share about what information/training that you have received regarding your child’s cancer? How adequate is the information that you have received so far?

  • What additional information related to care for your child would you like to have?

  • How would the information help you in providing care for your child at home?

  • What are your greatest concerns about providing care for your child after discharge?

  • After discharge, how would you obtain additional information related to caring for your child at home?

Topic guide for hospital-based healthcare providers
  • What are the essential information that needs to be given to parents, especially before the child is discharged home?

  • What are the common issues or concerns that arise after the child is discharged home?

  • What information or support can help address these issues after the child is discharged home?

  • What are your suggestions for improving support for parents’ informational needs?

  • Additional questions for community-based healthcare providers

  • What information do parents need to care for their child after discharge?

  • What are their greatest needs for information in providing care for the child at home?

  • How can parents be better supported to provide care for the child at home?