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Can you share about what information/training that you have received regarding your child’s cancer? How adequate is the information that you have received so far?
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What additional information related to care for your child would you like to have?
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How would the information help you in providing care for your child at home?
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What are your greatest concerns about providing care for your child after discharge?
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After discharge, how would you obtain additional information related to caring for your child at home?
Topic guide for hospital-based healthcare providers
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What are the essential information that needs to be given to parents, especially before the child is discharged home?
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What are the common issues or concerns that arise after the child is discharged home?
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What information or support can help address these issues after the child is discharged home?
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What are your suggestions for improving support for parents’ informational needs?
Additional questions for community-based healthcare providers
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What information do parents need to care for their child after discharge?
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What are their greatest needs for information in providing care for the child at home?
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How can parents be better supported to provide care for the child at home?