Table 2.

Components of a dedicated pediatric PH program

A. Team composition
Component	Required	Recommended (either at primary institution or through referral)
Program director: The primary clinical focus is pediatric PH. May have protected PH research time	⊗
PH team subspecialties: Multidisciplinary team for direct PH care	Pediatric cardiology and/or pediatric pulmonology	Neonatology pediatric Intensive care Pediatric Pulmonology/cardiology
Consulting services: Collaboration between PH team and consultant services	Genetics Palliative care Rheumatology Gastroenterology Physical Medicine and rehabilitation Cardiac anesthesia Interventional cardiology Cardiac surgery	Surgeons skilled in thromboendarterectomy (referral basis) Lung transplant specialists Developmentalist Palliative care Pediatric surgery
Program coordinator (recommended RN or APP): Performs coordination of care between patient, specialty pharmacies, and insurance companies; first line of team contact for patient/caregiver	⊗
Nurse practitioner: Provides medical and research support through inpatient and outpatient care including transition, communication with family and prostacyclin management	⊗
Ancillary services: Diverse team to work with medical team for interdisciplinary care delivery of comprehensive services and assessment	Social worker Pharmacist dietician Child life Administrative support	Pain management Genetics counselor/genetics

B. Treatments, services, and facilities offered for patient care
Pediatric interventional cardiology/pediatric cardiothoracic surgery	Acute vasodilator testing Atrial septostomy Ductus arteriosus stent	Reverse Potts shunt Lung transplantation
Continuous patient care coverage: Daily service and physician call schedule for PH patients	⊗
Comprehensive offering of vasodilator therapies: Expertise with all available pulmonary vasodilator treatments (oral, inhaled, subcutaneous, intravenous)	⊗
Patient, caregiver, and staff education: Education on prostacyclin therapy inpatient and at home	⊗
Treatment expertise: All WSPH/Panama classification groups of PH	Provide comprehensive care or consultation on neonatal/infant Group 3 patients	CTEPH program
Transition pathway: Identified partner for continuing adult care		⊗
Referral destination: Center for regional and affiliate partners, able to provide care for Medicaid patients	⊗
Full ancillary testing: Echocardiogram, catheterization, CT/MRI, V/Q, CPET, 6MWT, PFT	⊗
Institutional support: Recognized role of PH team within institution, support for expansion	⊗

C. Scholarly activity: research and education
Active participation in research: Industry‐sponsored, PI‐initiated, registries	⊗
Research support	Research coordinator	Statistician
Education of learners: Students, residents, fellows, colleagues		⊗
Hospital staff education	⊗
Conference participation: Regional (as applicable), local and national conferences	⊗
Commitment to quality improvement: Regular projects for program self‐assessment and growth	⊗