Table 1.

Characteristics of key informants, parent caregivers and their children with medical complexity.

CHARACTERISTICS OF KEY INFORMANTS	(N = 38)	%
Gender
Female	33	87
Male	5	13
Age (years)
25–34	5	13
35–44	15	39
45–54	13	34
55–64	5	13
Years of experience in complex care
Less than 6 months	3	8
6 to 11 months	2	5
1 to 2 years	4	11
3 to 4 years	8	21
5 to 10 years	15	39
11 to 20 years	6	16
Role in CCKO strategy
Leadership Table member*	11	29
Nurse practitioner	8	21
Physician	6	16
Allied health professional	4	11
Home and community care coordinator	5	13
Administrative staff	4	11
CHARACTERISTICS OF PARENT CAREGIVERS AND THEIR CHILDREN WITH MEDICAL COMPLEXITY	(N = 10)	%
Of the Parents Gender
Female	9	90
Male	1	10
Home setting
Urban	5	50
Rural	5	50
Education level
Some post-secondary	2	20
Completed secondary/high school	1	10
Completed post-secondary	7	70
Family structure
Never married- single parent	3	30
Married- dual parent	6	60
Divorced- single parent	1	10
Of the Parent’s Child with Medical Complexity
Age in months, median (IQR)	28.5 (99.75)
Gender
Male	5	50
Female	5	50
Primary diagnoses
Neurologic	4	40
Congenital/Genetic defect	3	30
Malignancy	2	20
Miscellaneous/Not elsewhere classified	1	10
# of diagnoses, mean (SD)	5.9 (2.0)
Medications used, mean (SD)	4.7 (2.5)
Technology devices used, mean (SD)	2.4 (1.5)
Hospital outpatient visits, mean (SD)	14 (17.0)

Characteristics of key informants, parent caregivers and their children with medical complexity, n (%) unless otherwise stated.

* Key Informants include clinical and administrative leads of regional hub sites, and ex officio members.