Table 2.
Demographics and baseline characteristics of patients with schizophrenia spectrum disorders and caregivers by caregiver discontinuation status (N=148).
| Parameter | Caregiver discontinuation statusa | ||||||||||
|
|
Discontinued early (n=45) | Completed study (n=103) | Total | ||||||||
| Patients | |||||||||||
|
|
Age (years), mean (SD) | 25.2 (4.3) | 25.2 (5.1) | 25.2 (4.8) | |||||||
|
|
Sex, n (%) | ||||||||||
|
|
|
Male | 31 (68.9) | 80 (77.7) | 111 (75) | ||||||
|
|
|
Female | 14 (31.1) | 23 (22.3) | 37 (25) | ||||||
|
|
Race, n (%) | ||||||||||
|
|
|
White | 26 (57.8) | 58 (56.3) | 84 (56.8) | ||||||
|
|
|
Black or African American | 17 (37.8) | 35 (34.0) | 52 (35.1) | ||||||
|
|
|
Multiple or other | 1 (2.2) | 10 (9.7) | 11 (7.4) | ||||||
|
|
|
Unknown or not reported | 1 (2.2) | 0 (0) | 1 (0.7) | ||||||
|
|
Ethnicity, n (%) | ||||||||||
|
|
|
Hispanic or Latino | 8 (17.8) | 22 (21.4) | 30 (20.3) | ||||||
|
|
|
Not Hispanic or Latino | 37 (82.2) | 80 (77.7) | 117 (79.1) | ||||||
|
|
|
Unknown or not reported | 0 (0) | 1 (1.0) | 1 (0.7) | ||||||
|
|
Living status, n (%) | ||||||||||
|
|
|
At home with family or friends | 41 (91.1) | 90 (87.4) | 131 (88.5) | ||||||
|
|
|
At home alone | 3 (6.7) | 7 (6.8) | 10 (6.8) | ||||||
|
|
|
Sheltered living | 0 (0) | 2 (1.9) | 2 (1.4) | ||||||
|
|
|
Other | 1 (2.2) | 3 (2.9) | 4 (2.7) | ||||||
|
|
Diagnosis, n (%) | ||||||||||
|
|
|
Schizophrenia | 29 (64.4) | 53 (51.5) | 82 (55.4) | ||||||
|
|
|
Schizoaffective disorder | 19 (42.2) | 46 (44.7) | 65 (43.9) | ||||||
|
|
|
Schizophreniform disorder | 0 (0) | 5 (4.9) | 5 (3.4) | ||||||
|
|
Functioning, mean (SD) | ||||||||||
|
|
|
IMRb total score, mean (SD) | 46.0 (6.2) | 50.0 (7.0) | 48.8 (7.0) | ||||||
|
|
|
CGI-Sc score, mean (SD) | 4.2 (1.0) | 4.2 (1.2) | 4.2 (1.1) | ||||||
| Caregivers | |||||||||||
|
|
Age (years), mean (SD) | 47.8 (13.3) | 51.7 (11.2) | 50.5 (11.9) | |||||||
|
|
Sex, n (%) | ||||||||||
|
|
|
Male | 9 (20) | 23 (22.3) | 32 (21.6) | ||||||
|
|
|
Female | 36 (80) | 80 (77.7) | 116 (78.4) | ||||||
|
|
Race, n (%) | ||||||||||
|
|
|
White | 28 (62.2) | 59 (57.3) | 87 (58.8) | ||||||
|
|
|
Black or African American | 16 (35.6) | 33 (32) | 49 (33.1) | ||||||
|
|
|
Multiple or other | 0 (0) | 9 (8.7) | 9 (6.1) | ||||||
|
|
|
Not reported or unknown | 1 (2.2) | 2 (1.9) | 3 (2) | ||||||
|
|
Ethnicity, n (%) | ||||||||||
|
|
|
Hispanic or Latino | 7 (15.6) | 18 (17.5) | 25 (16.9) | ||||||
|
|
|
Not Hispanic or Latino | 38 (84.4) | 84 (81.6) | 122 (82.4) | ||||||
|
|
|
Not reported | 0 (0) | 1 (1) | 1 (0.7) | ||||||
|
|
Relationship with patient, n (%) | ||||||||||
|
|
|
Parentd | 29 (64.4) | 83 (80.6) | 112 (75.7) | ||||||
|
|
|
Sibling | 4 (8.9) | 4 (3.9) | 8 (5.4) | ||||||
|
|
|
Other relative | 5 (11.1) | 4 (3.9) | 9 (6.1) | ||||||
|
|
|
Spouse or partner | 4 (8.9) | 7 (6.8) | 11 (7.4) | ||||||
|
|
|
Friend | 2 (4.4) | 3 (2.9) | 5 (3.4) | ||||||
|
|
|
Other | 1 (2.2) | 2 (1.9) | 3 (2) | ||||||
|
|
IEQe score, mean (SD) | ||||||||||
|
|
|
Total | 33.2 (18.2) | 29.0 (16.1) | 30.2 (16.8) | ||||||
|
|
|
Tension | 8.6 (6.1) | 7.0 (5.6) | 7.5 (5.7) | ||||||
|
|
|
Supervision | 4.2 (4.6) | 3.1 (3.0) | 3.5 (3.6) | ||||||
|
|
|
Worrying | 10.7 (6.2) | 10.5 (6.0) | 10.5 (6.0) | ||||||
|
|
|
Urging | 12.1 (7.2) | 10.9 (6.2) | 11.3 (6.6) | ||||||
|
|
SF-12f PCSg score, mean (SD)h | 48.5 (11.4) | 52.0 (8.9) | 51.0 (9.8) | |||||||
|
|
SF-12 MCSi score, mean (SD)h | 46.4 (10.2) | 47.2 (10.0) | 47.0 (10.1) | |||||||
aSafety analysis set (all caregivers or patients who entered the study).
bIMR: Illness Management and Recovery.
cCGI-S: Clinical Global Impression of Severity.
dIncludes stepparents, foster parents, and adoptive parents.
eIEQ: Involvement Evaluation Questionnaire.
fSF-12: 12-item Short Form Health Survey.
gPCS: physical component summary.
hFor SF-12 (PCS and MCS), there were 43 caregivers in the discontinued early group, 102 in the completed study group, and 145 in the total group.
iMCS: mental component summary.