Table 3.
Outcomes Mapped According to Data Sources
| Studies Included N = 210 | Clinical (n = 201) | Society-Related (n = 9) | Healthcare Costs and Utilization (n = 11) | Patient-Reported Outcome (n = 6) | ||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Mortality (n = 80) | Diagnosis (n = 138) | Surgery and Procedures (n = 17) | Drug Treatment (n = 22) | Disease Severity or Morbidity (n = 13) | Clinical Investigations (n = 7) | Pregnancy and Offspring (n = 21) | ||||
| Reported Data Source | n | n | n | n | n | n | n | n | n | n |
| Danish Health Data Authority/Statistics Denmark (n=188) | ||||||||||
| Danish Central Person Registry (n = 39) | 39 | |||||||||
| Danish Causes of Death Registry (n = 43) | 41 | 2 | ||||||||
| Danish National Patient Registry (n = 114) | 93 | 10 | 2 | 6 | 1 | 13 | 7 | |||
| Danish National Prescription Registry/ Registry of Medicinal Products Statistics (n = 29) | 11 | 17 | 2 | 1 | ||||||
| Danish National Health Insurance Service Registry (n=2) | 1 | 1 | ||||||||
| Danish Psychiatric Central Research Registry (n=20) | 9 | 1 | 1 | 9 | 2 | |||||
| Danish Medical Birth Registry (n = 2) | 1 | 2 | ||||||||
| Danish in Vitro Fertilization Registry (n = 1) | 1 | |||||||||
| Registry of Legally Induced Abortions (n = 1) | 1 | |||||||||
| Danish Pathology Registry (n = 6) | 5 | 1 | ||||||||
| Danish Cancer Registry (n = 29) | 27 | 2 | ||||||||
| Danish Education Registries (n = 3) | 3 | |||||||||
| DREAM Database (n = 2) | 2 | |||||||||
| Danish Central Crime Registry (n = 3) | 3 | |||||||||
| Danish Clinical Quality Program - National Clinical Registries, RKKP (n = 23) | ||||||||||
| Danish Rheumatology Database, DANBIO (n = 4) | 3 | 1 | 1 | 1 | 3 | |||||
| Danish Dermatology Database, DERMBIO (n = 1) | 1 | 1 | 1 | 1 | ||||||
| Danish Breast Cancer Group (DBCG) Database (n = 2) | 2 | |||||||||
| Danish Colorectal Cancer Group Database (n = 2) | 2 | |||||||||
| Danish Pancreatic Cancer Database (n = 1) | 1 | |||||||||
| Danish National Acute Leukemia Registry (n = 2) | 1 | 1 | ||||||||
| Danish National Lymphoma Registry (n = 2) | 1 | 1 | 1 | |||||||
| Danish Registry of Childhood Cancer (n = 1) | 1 | |||||||||
| Danish Heart Registry (n = 1) | 1 | |||||||||
| Danish Vascular Registry (n = 1) | 1 | |||||||||
| Danish Cardiac Arrest Registry (n = 1) | 1 | |||||||||
| Danish Pacemaker and ICD Registry (n = 1) | 1 | |||||||||
| Danish Hip Arthroplasty Registry (n = 1) | 1 | 1 | ||||||||
| Danish Knee Arthroplasty Registry (n = 1) | 1 | 1 | ||||||||
| Danish Multiple Sclerosis Treatment Registry (n = 1) | 1 | |||||||||
| Danish Intensive Care Database (n = 1) | 1 | 1 | ||||||||
| Danish Transfusion Database (n = 2) | 2 | |||||||||
| Other data holders (n = 17) | ||||||||||
| Danish Twin Registry (n = 1) | 1 | |||||||||
| Danish National Birth Cohort Database (n = 2) | 2 | |||||||||
| Danish Microbiology Database (n = 1) | 1 | 1 | ||||||||
| Danish Multiple Sclerosis Registry (n = 3) | 1 | 1 | 2 | |||||||
| Western Denmark Heart Registry (n = 2) | 2 | 1 | 2 | 1 | 1 | 1 | ||||
| Danish Familial Relational Database (n = 1) | 1 | |||||||||
| Danish National Cerebral Palsy Registry (n = 2) | 2 | |||||||||
| Danish Cytogenetic Central Registry (n = 1) | 1 | |||||||||
| Danish Pathology Data Bank (n = 2) | 2 | |||||||||
| Copenhagen Mammography Registry (n = 1) | 1 | |||||||||
| Danish Poison Information Centre (DPIC) Database (n = 1) | 1 | |||||||||
| National Academic Test* (n = 1) | 1 | |||||||||
Notes: The table present the number of studies using each outcome–registry combination as well as the general number of studies using a registry, outcome category (bold font) and subcategory. The table cells are color-coded according to the number size: dark grey (≥10), medium grey (5–9), and light grey (<5). White cells represent no outcome–registry combination identified. The number of studies is not mutually exclusive as one study can have investigated more than one outcome and used more than one outcome data source. The registries have been categorized according to data holder/permission authority (italic font). *Access to data through the Danish Agency for Information Technology and Learning66.