FIGURE 4.

Process of developing the conceptual model. Green: prioritisation at online survey; red: prioritisation at consensus meeting. PF-ILD: progressive fibrosing interstitial lung disease. ^#: muscle loss, stiffness in joints, joint pain and swollen and inflamed joints. ^¶: lack of psychological support, lack of satisfaction with healthcare and positive feelings/experiences with healthcare, concerns with diagnosis and need for more disease awareness, being more vigilant towards avoiding antigens. ⁺: symptoms from the online survey were adapted from the preliminary consensus model: three phlegm symptoms (difficulty bringing up phlegm, producing phlegm and bad-tasting phlegm) were grouped together; the shortness of breath (SoB) concept was split into SoB at rest and SoB on exertion; change in appetite added to differentiate from loss of appetite. ^§: muscular wasting was added as part of the final conceptual model.