Table 7.
The roles for the different types of stakeholders proposed to be involved in prioritising primary research topics (N=25)
| Types of stakeholders | Executive committee/ coordination | Theme identification phase | Establishment of initial list of topics | Refinement of topics/questions | Prioritisation/ Ranking of topics/questions | Selection of criteria and weighting method | Validation of prioritisation output | Process evaluation | Dissemination | Other |
| n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | n (%) | |
| Public policy-makers | 3 (12%) 39 57 62 |
3 (12%) 38 46 57 |
3 (12%) 38 46 60 |
1 (4%) 46 |
6 (24%) 37 46 47 60 62 65 |
1 (4%) 38 |
1 (4%) 46 |
1 (4%)57 | ||
| Healthcare providers | 5 (20%)39 45 57 62 53 | 10 (40%) 38 41 50 51 53 54 57 59 61 64 |
10 (40%) 38 41 45 59 60 61 62 64 53 54 |
1 (4%) 41 |
13 (52%) 41 45 47 50–54 59–62 64 |
3 (12%) 38 59 64 |
2 (8%) 46 52 |
1 (4%) 41 |
1 (4%) 62 |
1 (4%)57 |
| Researchers/academia | 7 (28%) 39 51 57 62 63 64 53 |
8 (32%) 38 41 46 50 53–55 57 |
7 (28%) 38 41 55 65 64 53 54 |
3 (12%) 41 46 52 |
10 (40%) 37 41 46 47 50 55 62 65 53 54 |
3 (12%) 38 55 64 |
1 (4%) 46 |
1 (4%) 41 |
1 (4%)57 | |
| Members of the public | 3 (12%) 39 57 62 |
3 (12%) 49 55–57 |
3 (12%) 49 55 56 64 |
1 (4%) 49 56 |
7 (28%) 37 47 55 62 64 49 56 54 |
2 (8%) (55)(64) |
1 (4%)57 | |||
| Patients and their representatives | 5 (20%) 57 65 64 52 53 |
9 (36%) 41 49–54 56 61 64 |
10 (40%) 41 45 60 61 65 52 64 49 56 53 54 |
2 (8%) 41 49 56 |
12 (48%) 41 45 50 51 60 61 65 52 64 49 56 53 54 |
1 (4%) 64 |
1 (4%) 52 |
1 (4%) 41 |
1 (4%) 45 |
1 (4%)57 |
| Caregivers | 1 (4%) 53 |
3 (12%) 50 51 53 |
4 (16%) 45 65 64 53 |
5 (20%) 45 50 51 53 54 65 |
1 (4%) 64 |
|||||
| Health system payers | 1 (4%) 62 |
2 (8%) 51 61 |
2 (8%) 61 62 |
4 (16%) 47 51 61 62 |
1 (4%) 62 |
|||||
| Research funders | 3 (12%)37 39 62 | 3 (12%) 38 41 46 |
3 (12%) 38 41 60 |
2 (8%) 41 46 |
5 (20%) 37 41 46 60 62 |
2 (8%) 37 38 |
1 (4%)41 | |||
| Product makers/Industry | 2 (8%) 39 62 |
2 (8%) 37 62 |
1 (4%)47 | |||||||
| Press & media organisations | 1 (4%)37 | |||||||||
| NGOs and advocacy groups | 4 (16%) 45 57 62 53 |
3 (12%) 38 53 57 |
4 (16%) 38 60 62 53 |
5 (20%) 37 45 54 60 62 |
1 (4%) 38 |
1 (4%) 62 |
1 (4%) 57 |
|||
| Internal staff | 1 (4%) 57 |
2 (8%) 57 59 |
1 (4%) 59 |
1 (4%) 59 |
2 (8%) 37 59 |
1 (4%)57 | ||||
| Healthcare managers | 1 (4%) 46 |
1 (4%) 46 |
1 (4%) 46 |
|||||||
| Other | 3 (12%) 38 39 63 |
2 (8%) 38 63 |
4 (16%) 38 61 63 64 |
1 (4%) 63 |
2 (8%) 61 63 |
1 (4%) 38 |
1 (4%) 63 |
1 (4%) 63 |
1 (4%)47 |