Table 1.

Participant demographic characteristics

	Person with ME/CFS	Family member
Number	1418	1418
Time since diagnosis	13.9 years	n/a
Mean age	45.8 (18–81)	51.9 (18–87)
Female	1214 (85.6%)	504 (35.5%)
Male	196 (13.8%)	902 (63.6%)
Other	8 (<1%)	12 (<1%)
Separate household		149 (10.5%)
Lives alone	158 (11.1%)
Relationship of person with ME/CFS to family member
Partner/spouse		991 (69.9%)
Parent		76 (5.4%)
Sibling		288 (20.3%)
Child		28 (1.9%)
Other		35 (2.5%)
>1 family member has ME/CFS		160 (11%)
Family member has ME/CFS		49 (3%)

ME/CFS, myalgic encephalomyelitis/chronic fatigue syndrome.