Table 2.
Inflammatory Bowel Disease (IBD) Subtype According to Incident and Prevalent Definition in the National Patient Register (NPR) Compared with IBD Subtype According to Medical Chart Review Expressed as Positive Predictive Values. N (%) if Not Otherwise Specified
| At diagnosis | Total | IBD Subtype According to Medical Records | Non-IBD | |||
|---|---|---|---|---|---|---|
| CD | UC | IBD-U | ||||
| IBD subtype in NPRa | CD | 102 (100%) | 80 (78%) | 7 (7%) | 11 (11%) | 4 (4%) |
| UC | 88 (100%) | 0 (0%) | 65 (74%) | 15 (17%) | 8 (9%) | |
| IBD-U | 35 (100%) | 13 (37%) | 9 (26%) | 8 (23%) | 5 (14%) | |
| Total | 225 | |||||
| At end of follow-up | IBD Subtype According to Medical Recordsc | |||||
| IBD subtype in NPRb | CD | 92 (100%) | 81 (88%) | 1 (1%) | 6 (7%) | 4 (4%) |
| UC | 85 (100%) | 4 (5%) | 60 (71%) | 13 (15%) | 8 (9%) | |
| IBD-U | 48 (100) | 13 (27%) | 20 (42%) | 10 (21%) | 5 (10%) | |
| Total | 225 | |||||
Notes: aPatients with ≥2 IBD listings in the NPR, subtype according to first two diagnostic listings only, ie “incident” definition. bSubtype according to all available information at end of follow-up (See also Supplementary Table S1B, ie, “prevalent” definition).cAt the discretion of the pediatric gastroenterologist reviewing the medical record in question (since all information required to fulfil the PIBD-classes algorithm was often not available at end of follow-up).
Abbreviations: IBD, inflammatory bowel disease; CD, Crohn´s disease; UC, Ulcerative colitis; IBD-U, inflammatory bowel disease unclassified.