Table 2.
Happy with the Learning Program | Acceptability |
• “It had a lot of helpful tips and ideas that I didn’t even know would work for [Child].” [Parent of a 9-year-old girl with stroke] • “I liked the explanation for why you do things, like oh you should be direct or whatever it was and this is the effect that it will have for your child.” [Parent of a 4-year-old boy with HIE] • “It was very helpful, I still use them to this day.” [Parent of a 9-year-old girl with stroke] • “I think they really covered all the bases to accommodate, learn everything that you needed to learn. They did a really good job knowing what was needed to help the parent and help the child interact with each other with the sessions.” [Parent of an 8-year-old girl with stroke] • “Website could be useful to anybody too not just a child who’s had a brain injury like we use it with our daughter as well.” [Parent of an 8-year-old girl with stroke] • “Content was easy to understand flowed well, loved the videos.” [Clinical Neuropsychologist] • “I like the multimodal approach to knowledge and skill building–especially enforced by the live coaching. Great that it's coaching and not just observing.” [Psychiatrist] • “I just watched the testimonials video, it’s so convincing. I kind of want to learn the techniques too.” [Neurologist] |
Usability |
• “it’s a lot more interactive, it’s a lot more family friendly.” [Parent of a 6-year-old girl with HIE] • “New one’s much nicer, easy to navigate and a lot better.” [Parent of a 9-year-old girl with stroke] • “…it's very straightforward, well placed, well detailed.” [Parent of a 8-year-old girl with stroke] • “I liked the different activities like the drag and drop kind of stuff.” [Parent of a 4-year-old boy with HIE] • “that you can use it on tablet [or] phone when you’re a busy family you’re not home often.” [Parent of a 8-year-old girl with stroke] • “I think it’s a very appealing website, I liked the videos, I like the pictures and the graphics.” [Parent of a 9-year-old girl with HIE] • “I think it was really easy to navigate and find the relevant information.” [Clinical Neuropsychologist] • “Although module 2 seem intimidating at first given the number of sections, I thought it was really well organized and easy to follow.” [Clinical Neuropsychologist] • “The site is easy to navigate. The use of pictures with the timeline of sessions is great.” [Clinical Psychologist] |
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Suggested Revisions | Recommendations |
• “It’d only let me see some of my words, it didn’t let me see the whole sentence.” [Parent of a 4-year-old boy with HIE] • “What would have been handy or even like further reading or something.” [Parent of a 4-year-old boy with HIE] • “Should be a contact us part at the top where it says home about sessions.” [Parent of an 8-year-old boy with stroke] • “One-page printed cheat sheet type.” [Parent of an 8-year-old girl with CHD] • “How can we provide this information to newcomers so if there is any idea or any resources just to translate this information to different languages to become more accessible for newcomer population who don’t speak English at this point?” [Parent of a 9-year-old girl with HIE] • “Direct clinicians on how to refer, self-refer. How to get in touch.” [Clinical Neuropsychologist] |
Dissatisfaction |
• “One part though that I thought was confusing when it was saying…talking about the positive opposites?” [Parent of a 4-year-old boy with HIE] • “The broken record. It didn’t seem like it helped.” [Parent of an 8-year-old boy with stroke] • “I found some of the videos like at the beginning there were like a million videos of special playtime.” [Parent of an 8-year-old boy with HIE] • “Some of the videos I found to be quite long.” [Parent of a 5-year-old boy with HIE] • “In module 5 you say you can do time-out anywhere, but you don’t cover doing it in public until module 6-I wonder if you could mention that they’ll learn it in module 6 since this is the hardest thing for parents to do.” [Developmental Psychologist] |