Table 2.

Themes, Subthemes, and Codes.

Themes	Subthemes	Codes
Perceived impacts of the pandemic on received health care services	Delays and losses in services Impacts of delays and losses in services Related feelings	Cancelled appointments; prolonged waiting time for services; loss of home care support; loss of school-related services; parental decision to delay services for the safety of their family Management of child's needs on their own; perceived amplification of child's symptoms Parental exhaustion; parental relief that appointments are cancelled; parental stress regarding child's potential regression
Benefits and challenges with telemedicine and technology in health care	Methods of telemedicine Advantages of telemedicine Concern about telemedicine	Appointment settings; caregivers involved; child's presence Being in the comfort of their home; saved time due to reduced travel; lessened emotional and physical burden of going to the hospital; more quality time spent with loved ones; saved costs associated with gas and parking; reduced work absenteeism; reduced child exhaustion; improved communication between parents and health care professionals Fear that physicians might miss important clinical features
Expectations of health care after the COVID-19 pandemic	Suggestions for long-term changes in their care Conditions for implementing telemedicine	Desire of implementing telemedicine in their child's long-term care Not all appointments should be conducted via telemedicine; telemedicine should be employed only when physical examination is not necessary; preference of video consultations over phone appointments; telemedicine should be employed only when the child is stable and well known to the physician

gLE, genetically determined leukoencephalopathy.