Skip to main content
. 2022 May 6;5(5):e2210762. doi: 10.1001/jamanetworkopen.2022.10762

Table 4. Mean Standardized PICU-QODD Score and Univariate Linear Regression Modelsa.

Variable Responses, No. (%) (N = 637) QODD score, mean (SD) Coefficient (95% CI)
Admission category
Medical 329 (52) 90.9 (9.1) [Reference]
Surgical 308 (48) 88.2 (9.9) −2.6 (−5.2 to −0.1)
Congenital comorbidity
Absent 474 (74) 90.5 (8.5) [Reference]
Genetic or noncardiac anomaly 163 (26) 87.0 (11.8) −3.5 (−7.0 to −0.1)
Medical intensity at end-of-lifeb
Low 272 (43) 90.5 (8.6) [Reference]
High 365 (57) 89.0 (10.2) −1.5 (−4.1 to 1.1)
Mode of death
Withdrawal of therapy 428 (67) 90.8 (8.8) [Reference]
Limitation to therapy 103 (16) 85.8 (10.3) −5.0 (−8.7 to −1.3)
CPR 78 (12) 86.7 (11.5) −4.0 (−8.9 to 0.8)
Comfort care only 15 (2) 93.1 (7.2) 2.3 (−2.9 to 7.5)
Brain death 13 (2) 94.8 (5.6) 4.1 (2.8 to 5.4)
Palliative care involvement
No palliative care 290 (46) 89.5 (10.2) [Reference]
Palliative care involved 347 (54) 89.7 (9.2) 0.1 (−2.6 to 2.8)
Death perceived to be aligned with family’s wishes
Yes 479 (75) 91.5 (8.3) 7.2 (4.4 to 10.0)
No 54 (8) 84.3 (11.4) [Reference]
NA 104 (16) 83.8 (10.7) −0.5 (−3.7 to 2.7)
Discipline
Medical 193 (30) 91.9 (7.8) [Reference]
Nursing 230 (36) 88.3 (10.6) −3.5 (−5.3 to −1.8)
Allied 214 (34) 88.9 (9.6) −3.0 (−4.5 to −1.5)
Pediatric critical care experience, y
<2 104 (16) 87.7 (8.9) −3.6 (−5.6 to −1.6)
2-5 161 (25) 88.2 (11.0) −3.1 (−5.4 to −0.7)
5-10 126 (20) 89.6 (9.7) −1.7 (−3.9 to 0.5)
10-15 87 (14) 91.3 (8.9) 0.0 (−2.0 to 2.0)
>15 158 (25) 91.3 (8.3) [Reference]

Abbreviations: CPR, cardiopulmonary resuscitation; ECMO, extracorporeal membrane oxygenation; NA, not applicable; PICU, pediatric intensive care unit; QODD, quality of dying and death.

a

Accounting for the correlation of multiple surveys within each patient.

b

Low intensity indicates no therapies, inotropes without respiratory support, and noninvasive ventilation or invasive ventilation with a maximum of 1 inotrope. High intensity indicates invasive ventilation with more than 1 inotrope, having an open chest, receiving ECMO, or receiving CPR.