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. Author manuscript; available in PMC: 2023 May 1.
Published in final edited form as: Genet Med. 2022 Feb 25;24(5):1108–1119. doi: 10.1016/j.gim.2022.01.008

Table 2:

Considerations for Stakeholder Engagement Strategies. A comparison of the stakeholder engagement strategies utilized by the CSER project groups highlighting some benefits and challenges for each approach.

Approach Benefits Challenges
Advisory
Committees
•  Partnership between researchers and community
•  Long term relationship throughout the research project facilitates broader ideas and applications
•  May not be representative of target population
•  Requires significant time commitment from research team and stakeholders over course of the full project or as standing committee
•  Requires transparency and shared decisionmaking
Targeted One-on-One Feedback •  Time and method can be tailored for convenience of the stakeholder
•  Reduces constraints of transportation and childcare
•  Increased privacy of discussion may enable deeper sharing
•  Recruitment on an individual level can refine representativeness
•  No group dynamic
•  Limited number of stakeholders
•  Feedback may be more individual compared to community/broader level
•  Feedback may not be representative of target
Feedback / Pilot Groups •  Group dynamics can introduce new and converging ideas
•  Can enables perspective from larger numbers of stakeholders via separate groups
•  Allows further exploration of responses through repeat meetings
•  Discussion can be dominated by stronger personalities
•  Need to coordinate space/time to meet needs of group (e.g., evenings, weekends)
•  Need to consider other supports to enable participation (e.g., travel, food, childcare)
Community Engagement Studios •  Facilitated by a neutral moderator
•  Enables teams to tap into readily available expertise and processes
•  Representative populations recruited by moderator may be different than target study population
•  Consulting fees for facilitators may be higher than internal teams
Consortium Stakeholder Group •  Representation across the consortium projects
•  Enables broader discussion on shared themes
•  Increases diversity and/or generalizability of perspectives
•  Interaction with/influence on consortium leadership and funders
•  Scheduling/communications and budgeting logistics across a broad geographic area
•  Issues and/or feedback may not be applicable to a specific project
•  Consortium level issues may not be as relevant to the local project stakeholder
•  Consortium-level issues may not be as relevant to the local project stakeholder leading to less feedback
Deliberative Democracy •  Includes community voice from the population studied
•  Includes relevant subject matter experts on the target issue
•  Aims to propose policy or opinion about a defined issue through consensus building
•  Resulting policy/proposal reflects the informed opinion of the stakeholders
•  Significant time commitment from research team and stakeholders over a defined period of time
•  May involve large numbers of stakeholders representing multiple perspectives
•  Can require a team of facilitators to coordinate
•  Often includes significant capacity building through informational presentations to enable informed deliberation
Human-Centered Design •  Iterative process that involves direct collaboration with stakeholders
•  Participatory design results in solutions that are more relevant, meaningful, and useful to stakeholders
•  Significant time commitment from research team and stakeholders
•  Stakeholders may not be representative of overall participant population