Table 2.
Tools for assessing psychosocial issues and quality of life of children and their parents/caregivers
| Tools | Purpose/primary use | No. of items and administration time | Target population | Strengths and limitations |
|---|---|---|---|---|
| CBCL/6–18 YSR/11–18, and TRF/6–18) [40] | It measures internalizing behavior problems, externalizing behavior problems and social competence in children and adolescence based on the preceding 6 months. | 113 Behavioral items, scored as (0) not true, (1) somewhat true, (2) very true or often true. | CBCL/6–18 parents | Strengths: Multiple CBCL information can be collected on the same child. |
| 15 to 20 minutes | YSR/11–18 youths TRF/6–18 teachers familiar to the child | It is a reliable and valid measure used for both clinical interventions and research purposes. | ||
| Translated in other languages. | ||||
| Limitations: It takes a long time to fill the form. | ||||
| Scoring is complex. | ||||
| SDQ [41] | It screens children's emotional problems, conduct disorder, hyperactivity, peer problems, and prosocial behaviors over the last 6 months. | 25 Items, scored as 0 (not true). 1 (sometimes true), 2 (certainly true). | Children between ages 4 to 17 years; | Strengths: reliable and valid measure. |
| parent, teacher, and self-report versions are available | It can be used for both clinical interventions and research purposes. | |||
| 5 Minutes | Easy to administer. | |||
| Translated in other languages. | ||||
| Limitation: children below 11 years cannot self-report. | ||||
| RSE [42] | It measures global selfesteem | 10 Items rated on a 4-point scale as strongly agree, agree, disagree, and strongly disagree. | Children above 12 years | Strengths: There is considerable evidence of its reliability and validity. |
| Translated in other languages. | ||||
| 5 Minutes | Quick and easy to administer. | |||
| Limitation: Validity not established for children below 12 years of age. | ||||
| CFSEI- [43] | It is a self-report inventory to identify children who may require psychological evaluation and intervention. It is also applicable in research studies. | Primary form- 29 items, Intermediate form- 64 items, Adolescent form- 67 items. | Ages between 6-18.11 years. | Strengths: It is a culture fair test that has good reliability and validity. |
| The responses are in yes or no format. | Primary form for 6 to 8 years of age | Limitations: Sometimes responses may not reflect their actual emotional state, and there are chances of giving socially desirable answers. | ||
| 1015 Minutes | Intermediate form for 9 to 12 years of age | |||
| Adolescent form for 13 to 18 years of age. | ||||
| CDI-2 [44] | It assesses the cognitive, affective, and behavioral signs of depression. | CDI 2: Self report has 28 items and | Parent, teacher, and self-report (7-17 years) are available | Strengths: Reliable and valid tool and can be used in settings such as schools and clinics. |
| CDI 2: Self-report short version has 12 items. The responses are marked as 0 (absence of symptoms), 1 (mild symptom), 2 (definite symptom). | Translated in other languages. | |||
| CDI 2: Teacher has 12 items, and CDI 2: parent has 17 items. The responses are marked as 0 (not at all), 1 (sometimes), 2 (often), 3 (most of the time). | Limitations: test results must be corroborated with other findings such as clinical interview and must be confirmed by a qualified clinician. | |||
| 5–15 Minutes | ||||
| SCARED [45] | It screens for childhood anxiety disorder and assesses panic/somatic, separation anxiety, generalized anxiety, and school phobia. | 41 Items rated on a 3-point scale 0 (not true) to 2 (very true) | Children between 8-18 years. Both child and parent versions are available. | Strengths: It is a valid measure with good and sensitive to change in short interventions. |
| Translated in other languages. | ||||
| Limitations: It should be used by a trained clinician | ||||
| Insufficient evidence of test-retest reliability over short periods of time. | ||||
| STAI-CH [46] | It evaluates the current state of anxiety and also measures the stable aspects of anxiety. | 40 Items and responses are rated on a 3-point scale. | It is applicable for children between 9-12 years. Both parent and child versions are available. | Strengths: It is a widely used measure of anxiety |
| 20 Minutes | Translated in other languages. | |||
| Limitations: The ability to detect change in trait anxiety is less responsive as compared to state anxiety. | ||||
| PedsQL 4.0 [47] | It can be used across pediatric populations with chronic and acute health conditions, community and school populations. Measures the physical, emotional, social, and school domains. | 23 Items; Parent report and child report format: 5-point response scale (0 to 4). | It has versions for toddlers (2-4), young children (5-7), children (8-12), and teens (13-18). Child rated version and parent-rated version are available. | Strengths: Quick completion and easy to score. |
| Young child self-report format (ages 5-7): 3-point scale. | It has good psychometric properties. | |||
| 5 Minutes | Translated in other languages. | |||
| Limitations: Charges applicable for funded research which can be expensive. | ||||
| PedsQL ESRD Module 3.0 [48] | It measures end-stage renal disease-specific health-related quality of life-general fatigue about my kidney disease, treatment problems, family and peer interaction, worry, perceived physical appearance, and communication. | 34 Items and 7 subscales. | It has versions for toddlers (2-4), young children (5-7), children (8-12), and teens (13-18). Child rated version and parent-rated version are available. | Strengths: It has good psychometric properties. |
| Parent report and child report format: 5-point response scale (0 to 4). | Translated in other languages. | |||
| Young child self-report format (ages 5-7): 3-point scale. | Limitations: Charges applicable for funded research which can be expensive. | |||
| 10 Minutes | ||||
| GHQ-12 [49] | Designed to measure the current mental health, GHQ was initially developed as a 60-item instrument, but a range of shortened versions 12, 20, 30 are available. | 12 Statements, rated on a 4-point scale (less than usual, more than usual, rather more than usual, and much more than usual). | Adolescents, parents | Strengths: The GHQ-12 is brief, simple, easy to complete, and scored. |
| Its application in research settings as a screening tool is well documented. | ||||
| 5 Minutes | Translated in other languages. | |||
| Limitations: Possibility of response bias on negatively stated items. | ||||
| ZBI [50] | It is designed to reflect the caregiver's stresses. | 22 Items rated on a 5-point scale from 0 (never) to 4 (nearly always). | Caregivers' self-report | Strengths: It has been widely used in clinical practice and research. |
| 5 minutes | Translated in other languages. | |||
| Limitations: The self-checklist format can be limiting. | ||||
| FES [51] | It examines the family members’ current family as they perceive it, the type of family they prefer, and their expectations of what a family will be like. The FES can be measured in 3 ways Real (form R), Ideal form I) and Expected (form E). The FES is composed of 10 subscales measuring 3 dimen sions namely family relationship, personal growth, and system maintenance and change. | 90 True or false items. | Children 11 years and older | Strengths: Widely used tool |
| 15-20 Minutes | Translated in other languages. | |||
| It is mainly used in clinical settings to facilitate family therapy. | Limitations: Low internal consistency for 5 subscales. |
CBCL/6-18, child behavior checklist; YSR/11-18, youth self-report; TRF/6-18, teacher's rating form; SDQ, strengths and difficulties questionnaire; RSE, Rosenberg Self-esteem Scale; CFSEI-3, culture free self-esteem inventory 3rd edition; CDI-2, Children's Depression Inventory-2nd edition; SCARED, screen for child anxiety related emotional disorders; STAI-CH, state-trait anxiety inventory for children; PedsQL 4.0, Peds Quality of Life Questionnaire; PedsQL ESRD Module 3.0, ESRDspecific module; GHQ-12, general health questionnaire; ZBI, Zarit burden interview; FES, family environment scale.