Table 3.
Psychological management plan for children with chronic kidney disease and their families
| Intervention with the child | ||
| Psycho-education. When therapeutic work is done with a younger child, often modelling is used. The care provider may, for example, educate a doll about the doll’s problems and how thinking affects behavior. In this manner, the care provider may teach skills and alternative behaviors. | ||
| Self-care skills related to their illness include taking medicine following a proper daily routine, self-monitoring calendar or using alarm clocks or a checklist or sticker charts for young children and the importance of diet. Involve older children in health-related discussions (concerns about illness, treatments). | ||
| Relaxation skills training such as controlled breathing and muscle relaxation exercises as stressful events can increase physiological arousal and maintain or exacerbate symptoms. | ||
| Cognitive coping strategies such as distraction techniques, positive self-talk (can use storybooks in young children) help children manage their pain and other problems. | ||
| Cognitive restructuring to help children replace maladaptive thoughts with more adaptive and productive thoughts. | ||
| Group interventions allow children to share their experiences and challenges, help other sick children, learn problem-solving, increase self-confidence and self-efficacy, and facilitate a healthy adjustment to one’s illness. | ||
| School readjustments | ||
| - Attending school for shortened periods. | ||
| - May benefit from tuition or attending a temporary classroom aid to assist them in learning concepts they may not have learned. | ||
| - Identify a peer who can be a ‘buddy’ to support the child reintegrating into the classroom’s social networks. | ||
| - Provide medical information to the teacher. | ||
| Family intervention | ||
| Parents | ||
| Connecting a parent with another parent who visits the medical team. | ||
| Help support parents in balancing their responsibilities as a caregiver and in their personal lives. | ||
| Parent training program. Reduce dysfunctional parenting styles, improve communication patterns, increase parental self-efficacy and decrease parenting stress, promote parent-child support for autonomy, reinforce positive behaviors. | ||
| Practical guidance and assistance regarding transport, financial management, and child’s school reintegration. | ||
| Siblings | ||
| Psycho-education about chronic diseases. | ||
| Brief involvement in counseling sessions may assist a child in dealing with his or her feelings related to the troubles and pain his or her sibling is facing. | ||
| Support groups for siblings may help them cope with grief and trauma related to a brother or sister’s illness. | ||