Table 3.
Themes, definitions, subthemes, excerpts, and sources: sample qualitative data findings.
| No. | Themes and sub-themes | Definitions | Quote or excerpt from qualitative data source | Source |
|---|---|---|---|---|
| Knowledge | Knowledge among community, family, and DCS | |||
| 1 | Brain injury | Impact of injury on cognition, behavior, and lives | The community needs to have greater awareness of brain injury, that it could happen to anyone, that it should not be stigmatized. | FGD 1-19-17 |
| 2 | DCS role and work | Role and care work of DCS | The community does not know who we are. How can we get to know each other? How can we get them to accept us? | CTM 1-26-17 |
| Community | Local community (residents, businesses, etc.) | |||
| 3 | Stigma | Stigma toward residents and care staff | The community does not understand that brain injured individuals are not harmful, despite some potential behavioral issues. | CTM 3-16-17 |
| 4 | Respect | Respectful treatment and perceptions (or lack of) | Our work with residents who have brain injury is not valued. | CTM 1-26-17 |
| 5 | Sustainability | Sustainability of efforts to engage community | Building relationships between the community and residents and staff is a cycle. This will be an ongoing process. | CTM 3-16-17 |
| Family | Family members of group home residents | |||
| 6 | Respect | Respectful interactions (or lack of same) | Negative behaviors by family hurt staff morale and make staff feel their care work is not appreciated. | CTM 2-23-17 |
| 7 | Some family members are surprised to learn that “staff really care.” This new information makes them want to know staff better. | CTM 3-2-17 | ||
| 8 | DCS role and work | Role and care work of DCS | Yelling at staff by family members shows lack of respect for staff role | CTM 2-23-17 |
| Communication | Communication between community and DCS, and family and DCS | |||
| 9 | Sustainability | Build new communication skills | Staff can be supported by management to learn ways to curb rude behavior from family. For example, the rudeness of others can be limited with polite talk, e.g., “How are you today?” | CTM 3-16-17 |
| 10 | We are concerned about how our comments might be received by the community and family. We need advice on communication and language. | CTM 3-31-17 | ||
| 11 | Respect | Respectful interactions (or lack of same) | We need to thank the community and make sure they know how much we appreciate their presence and what they already do. | CTM 3-31-17 |
| 12 | I felt people were listening. | SM 4-21-17 | ||
| Intervention | Community event planned by change team | |||
| 13 | Goal | Goal for intervention | Improve relationships between residents and community, staff and family, staff, and community. | CTM 1-26-17 |
| 14 | Activity | Activity at intervention | A fishbowl exercise is better than a panel presentation because it is informal, and more people can participate. | CTM 3-9-17 |
| 15 | We want to share the fact that the US and English-speaking African countries were colonized by England, and each has resistance heroes (like the Minutemen). | CTM 3-9-17 | ||
| 16 | Outcome | Self-report, during FGD or KII | An expectation has been set: staff are going into the community, and the community has said to us “Come to us, we will be welcoming.” | KII June 2017 (DCS) |
| 17 | The level of effort involved in a project like this is a barrier. Keeping staff involved is difficult. | KII June 2017 (HM) | ||
CTM, change team meeting; DCS, direct care staff; FGD, focus group discussion; HM, house manager; KII, key informant interviews; SM, staff meeting.