Table 4.
Pros and cons of CSS reported by patients/caregivers
| Cons | ||
|---|---|---|
| I initially thought that I could not be able to learn about CSS | 53% | (n = 16) |
| I initially thought that my child’s care would be disrupted and the quality of care would decrease | 20% | (n = 6) |
| At first, I was worried that face-to-face visits would decrease | 3% | (n = 1) |
| I always feel like I am being observed | 23% | (n = 7) |
| I can only talk to nurses about the system | 80% | (n = 24) |
| Pros | ||
| I like being under constant monitoring, and it makes me feel safe | 90% | (n = 27) |
| Sharing the responsibility of home treatment decreased my burden | 63% | (n = 19) |
| It is very good that there is no obligation to keep records at home | 90% | (n = 27) |
| Being telephoned is better than having to call the center | 47% | (n = 14) |
| My problems are solved in a much shorter time than before | 47% | (n = 14) |
| Our family adherence to PD treatment increased | 63% | (n = 19) |
| I became more confident in arranging treatment | 57% | (n = 17) |
| Changing therapy according to CSS data improved my quality of life (e.g., I felt safe when edema or shortness of breath was resolved by treatment change) | 47% | (n = 14) |
| My hospital visits decreased | 20% | (n = 6) |
| I have saved my time by eliminating waiting times in hospital | 3% | (n = 1) |
| I have saved money | 3% | (n = 1) |
| The shortness of breath and edema of my child decreased | 57% | (n = 17) |
| My curiosity and responsibility regarding my child’s treatment is increased | 13% | (n = 4) |
| The activity and physical capacity of my child increased | 3% | (n = 1) |
| The school success of my child increased | 7% | (n = 2) |
| The school attendance of my child increased | 10% | (n = 3) |
| Compared to the first months, the sleep quality of my child improved, waking up decreased | 83% | (n = 25) |
| My sleep quality improved | 70% | (n = 21) |