Table 1.

Components of survey assessing healthcare perceptions of transition among parents of adolescents with congenital heart defects in two sites, Georgia and New York

Survey component	Measured By
Patient (adolescent) demographics	Parental educational attainment Adolescent’s age Adolescent’s grade in school Health insurance status (current) Race Hispanic/Latino ethnicity Adolescent’s sex
Health care utilization	When child last saw any provider When child last saw pediatric cardiologist Location of interaction with pediatric cardiologist Inability to meet need for interaction with provider
Quality of life	Pediatric Quality of Life Inventory ™ (PedsQL™) (cardiac module) covering: Disease impact Psychosocial impact
Transition perceptions	Perceptions of needed care in adulthood Perceptions of provider for adult specialty cardiac care Expected age for adolescent to transfer to adult provider Perceived barriers for transition to adult provider