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. Author manuscript; available in PMC: 2022 May 16.
Published in final edited form as: Pediatr Cardiol. 2020 Jun 4;41(6):1220–1230. doi: 10.1007/s00246-020-02378-z

Table 2.

Frequencies and percentages of parent-reported demographic characteristics of adolescents with congenital heart defects (CHD) overall and by site, Georgia and New York

Combined (N = 451) Georgia (GA)
n = 274 (60.7%)
New York (NY)
n = 177 (39.3%)
P value
Adolescent characteristics
Sex 0.0640
Male 248 (55.1) 160 (58.6) 88 (49.7)
Female 202 (44.9) 113 (41.4) 89 (50.3)
Missing 1 1 0
Race 0.4102
White 316 (72.8) 185 (70.9) 131 (75.7)
Black 81 (18.7) 54 (20.7) 27 (15.6)
Other/mixed race 37 (8.5) 22 (8.4) 15 (8.7)
Missing 17 13 4
Ethnicity 0.0445
Not Hispanic 407 (92.3) 251 (94.4) 156 (89.1)
Hispanic 34 (7.7) 15 (5.6) 19 (10.9)
Missing 10 8 2
Age (years) 0.1046
11–12 59 (13.1) 43 (15.7) 16 (9.0)
13–14 130 (28.8) 74 (27.0) 56 (31.6)
15–19 262 (58.1) 157 (57.3) 105 (59.3)
CHD severity 0.1161
Non-severe 255 (56.5) 163 (59.5) 92 (52.0)
Severe 196 (43.5) 111 (40.5) 85 (48.0)
Insurance 0.0070
Private only 214 (49.4) 134 (49.1) 80 (50.0)
Any public 203 (46.9) 123 (45.1) 80 (50.0)
Selfpay/uninsured 16 (3.7) 16 (5.9) 0 (0.0)
Missing 18 1 17
Last saw health care provider 0.0616
Within past 6 months 384 (86.7) 244 (89.1) 140 (82.8)
> 6 months ago 59 (13.3) 30 (10.9) 29 (17.2)
Missing 8 0 8
Last saw cardiologist < 0.0001
Within past 6 months 274 (61.7) 200 (73.3) 74 (43.3)
> 6 months ago 170 (38.3) 73 (26.7) 97 (56.7)
Missing 7 1 6
Parent characteristic
Education 0.6344
High school or less 85 (19.0) 49 (17.9) 36 (20.9)
Some college/assoc./trade 147 (33.0) 94 (34.3) 53 (30.8)
College or higher 214 (48.0) 131 (47.8) 83 (48.3)
Missing 5 0 5

Sample includes consented parents of adolescents with a congenital heart defect between ages 11 and 19 years. P values for X2 comparison between the two study sites and do not include missing data; bolded P values are significant. All measures are for adolescents, except parental education