Table 4.
Transition perceptions reported by parents of adolescents with congenital heart defects (CHD) combined across sites, Georgia and New York
| Transition questions | Combined N (%) | Georgia (GA) n (%) | New York (NY) n (%) | P value |
|---|---|---|---|---|
| Told by a provider your child will continue to need cardiac care into adulthood? | 0.0521 | |||
| Yes | 348 (77.8) | 220 (80.6) | 128 (73.6) | |
| No | 45 (10.1) | 20 (7.3) | 25 (14.4) | |
| Unsure | 54 (12.1) | 33 (12.1) | 21 (12.1) | |
| Missing | 4 | 1 | 3 | |
| Who will provide heart care in adulthood? | 0.0246 | |||
| Cardiologist | 376 (85.8) | 239 (88.9) | 137 (81.1) | |
| Primary care physician | 20 (4.6) | 7 (2.6) | 13 (7.7) | |
| Don’t know | 42 (9.6) | 23 (8.6) | 19 (11.2) | |
| Missing | 13 | 5 | 8 | |
| What type of cardiologist will provide care in adulthood? | 0.0108 | |||
| Adult congenital cardiologist | 226 (60.8) | 154 (65.3) | 72 (52.9) | |
| Pediatric cardiologist | 33 (8.9) | 14 (5.9) | 19 (14.0) | |
| General adult cardiologist | 72 (19.4) | 47 (19.9) | 25 (18.4) | |
| Don’t know | 41 (11.0) | 21 (8.9) | 20 (14.7) | |
| Missing | 4 | 3 | 1 | |
| Age of expected transition | 0.0473 | |||
| < 18 years | 16 (4.1) | 9 (3.8) | 7 (4.6) | |
| 18–20 years | 234 (60.0) | 155 (64.9) | 79 (52.3) | |
| ≥ 21 + years | 140 (35.9) | 75 (31.4) | 65 (43.1) | |
| Missing | 61 | 35 | 26 | |
| Parents reporting at least one transition-related concern | 0.2601 | |||
| Yes | 391 (91.6) | 254 (92.7) | 137 (89.5) | |
| No | 36 (8.4) | 20 (7.3) | 16 (10.5) | |
| Missing | 24 | 0 | 24 | |
| Potential Concerns of Transitioning to Adult Care* | ||||
| Replacing the strong relationship with the existing provider/team | 259 (60.7) | 163 (59.5) | 96 (62.8) | 0.5090 |
| Difficulty finding an appropriate adult health care provider | 208 (48.7) | 145 (52.9) | 63 (41.2) | 0.0199 |
| Difficulty accessing health insurance as an adult | 186 (43.6) | 142 (51.8) | 44 (28.8) | < 0.0001 |
| Adult providers not understanding your child’s medical condition | 154 (36.1) | 102 (37.2) | 52 (34.0) | 0.5039 |
| Child’s anxiety about a new provider | 144 (33.7) | 104 (38.0) | 40 (26.1) | 0.0133 |
| Insurance issues due to switching to new health care provider | 131 (30.7) | 100 (36.5) | 31 (20.3) | 0.0005 |
| Geographic distance to an adult health care provider | 78 (18.3) | 56 (20.4) | 22 (14.4) | 0.1203 |
Bolded P values are significant