TABLE 1.
Baseline characteristics
| Survey order |
Has heard of genetic testing before this study |
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|---|---|---|---|---|---|---|---|
| Characteristics | All participants | A benefits presented first | B drawbacks presented first | p-value, test statistic (df) | Yes | No | p-value, test statistic (df) |
|
|
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| n (col %) or mean (± SD) | |||||||
|
|
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| No. of participants | 102 | 55 | 47 | – | 72 | 30 | – |
| Age (years) | 46 (± 14) | 45 (± 15) | 47 (± 13) | P = .434, t = −.79 (99) | 48 (± 14) | 42 (± 14) | P = .0969, t = −1.68 (99) |
|
| |||||||
| Gender | P = .591, x2 = .29 (1) | P = .817 | |||||
| Male | 32 (31%) | 16 (29%) | 16 (34%) | – | 22 (31%) | 10 (33%) | – |
| Female | 70 (69%) | 39 (71%) | 31 (66%) | 50 (69%) | 20 (67%) | ||
|
| |||||||
| Race | P = .532 | P = .412 | |||||
| Black/African American | 79 (77%) | 45 (82%) | 34 (72%) | – | 58 (81%) | 21 (70%) | – |
| West Indies/Caribbean | 9 (9%) | 4 (7%) | 5 (11%) | 6 (8%) | 3 (10%) | ||
| Mixed/other/no response | 14 (14%) | 6 (11%) | 8 (17%) | 8 (11%) | 6 (20%) | ||
|
| |||||||
| Ethnicity | P = .648 | P = .320 | |||||
| Hispanic | 24 (24%) | 14 (25%) | 10 (21%) | – | 15 (21%) | 9 (30%) | – |
| Non-Hispanic | 78 (76%) | 41 (75%) | 37 (79%) | 57 (79%) | 21 (70%) | ||
|
| |||||||
| Place of birth | P = .733 | P = .027 | |||||
| United States | 65 (64%) | 36 (65%) | 29 (62%) | – | 48 (67%) | 17 (57%) | – |
| West Indies/Caribbean | 31 (30%) | 17 (31%) | 14 (30%) | 23 (32%) | 8 (27%) | ||
| Africa | 5 (5%) | 2 (4%) | 3 (6%) | 1 (1%) | 4 (13%) | ||
| Other | 1 (1%) | 0 (0%) | 1 (2%) | 0 (0%) | 1 (3%) | ||
|
| |||||||
| Relationship to the individual they accompanied | P = .964 | P = .805 | |||||
| First degree (parent/child/sibling) | 56 (55%) | 31 (56%) | 25 (53%) | – | 41 (57%) | 15 (50%) | – |
| Spouse | 25 (25%) | 13 (24%) | 12 (26%) | 17 (24%) | 8 (27%) | ||
| Other/no response | 21 (21%) | 11 (20%) | 10 (21%) | 14 (19%) | 7 (23%) | ||
|
| |||||||
| Highest level of education completed | P = .730 | P = .279 | |||||
| High school/GED or less | 29 (28%) | 15 (27%) | 14 (30%) | – | 16 (22%) | 13 (43%) | – |
| Technical/associate degree | 10 (10%) | 6 (11%) | 4 (9%) | 8 (11%) | 2 (7%) | ||
| Some college | 28 (27%) | 16 (29%) | 12 (26%) | 22 (31%) | 6 (20%) | ||
| Bachelor’s degree | 23 (23%) | 10 (18%) | 13 (28%) | 16 (22%) | 7 (23%) | ||
| Master’s degree or Doctorate | 12 (12%) | 8 (15%) | 4 (9%) | 10 (14%) | 2 (7%) | ||
|
| |||||||
| Current health insurance | P = .911 | P = .048 | |||||
| Private | 45 (44) | 26 (47%) | 19 (40%) | – | 37 (51%) | 8 (27%) | – |
| Public | 32 (31) | 16 (29%) | 16 (34%) | 17 (24%) | 15 (50%) | ||
| Both | 12 (12) | 6 (11%) | 6 (13%) | 8 (11%) | 4 (13%) | ||
| Other/unknown/unsure/no response | 12 (13) | 7 (13%) | 6 (13%) | 10 (14%) | 3 (10%) | ||
|
| |||||||
| Currently employed | P = .306, x2 = 1.05 (1) | P = .375 | |||||
| Yes | 64 (63) | 37 (67%) | 27 (57%) | – | 43 (60%) | 21 (70%) | – |
|
| |||||||
| Attitudes and experiences prior to survey | |||||||
|
| |||||||
| Considers themselves generally healthy | P = .921 | P = .334 | |||||
| Yes | 85 (83%) | 45 (82%) | 40 (85%) | – | 58 (81%) | 27 (90%) | – |
| No | 11 (11%) | 6 (11%) | 5 (11%) | 8 (11%) | 3 (10%) | ||
| Unsure | 6 (6%) | 4 (7%) | 2 (4%) | 6 (8%) | 0 (0%) | ||
|
| |||||||
| Trusts the healthcare system to do the right thing | P = .919 | P = .270 | |||||
| Disagree or neither agree/disagree | 11 (11%) | 6 (11%) | 5 (11%) | – | 10 (14%) | 1 (3%) | – |
| Somewhat agree | 48 (47%) | 27 (49%) | 21 (45%) | 34 (47%) | 14 (47%) | ||
| Strongly agree | 43 (42%) | 22 (40%) | 21 (45%) | 28 (39%) | 15 (50%) | ||
|
| |||||||
| Has heard of organ donation | P = .723 | P = .690 | |||||
| Yes | 94 (92%) | 50 (91%) | 44 (94%) | – | 67 (93%) | 27 (90%) | – |
|
| |||||||
| Has considered organ donation (n = 94) | P = .523, x2 = .41 (1) | P = .625 | |||||
| Yes | 65 (69%) | 36 (72%) | 29 (66%) | – | 45 (67%) | 20 (74% | – |
|
| |||||||
| Has considered becoming a living kidney donor (n = 94) | P = .936 | P = .494 | |||||
| Yes | 53 (56%) | 28 (56%) | 25 (57%) | – | 36 (54%) | 17 (63%) | – |
|
| |||||||
| Registered organ donor (n = 94) | P = .722 | P = .497 | |||||
| Yes | 37 (39%) | 20 (40%) | 17 (39%) | – | 27 (40%) | 10 (37%) | – |
| No | 53 (56%) | 27 (54%) | 26 (59%) | 36 (54%) | 17 (63%) | ||
| Do Not Know/Not Sure | 4 (4%) | 3 (6%) | 1 (2%) | 4 (6%) | 0 (0%) | ||
|
| |||||||
| Has heard of genetic testing | P = .343, x2 = .90 (1) | – | |||||
| Yes | 72 (71%) | 41 (75%) | 31 (66%) | – | – | – | – |
|
| |||||||
| Has considered or been approached for genetic testing (n = 72) | P = .906, x2 = .01 (1) | – | |||||
| Yes | 25 (35%) | 14 (34%) | 11 (35%) | – | – | – | – |
|
| |||||||
| Has participated in genetic testing through a healthcare provider (n = 72) | P = 1.000 | – | |||||
| Yes | 16 (22%) | 9 (22%) | 7 (23%) | – | – | – | – |
|
| |||||||
| Has participated in genetic testing through a commercial service (n = 72) | P = .227 | – | |||||
| Yes | 6 (8%) | 5 (12%) | 1 (3%) | – | – | – | – |