Table 1.
Characteristics of the population (n = 502) and basic information on GD and medical insurance.
| Items | M (P25, P75)/ ±s | N (%) |
|---|---|---|
| 1. Characteristic | ||
| Age | ||
| <3 years | 1.50 (0.93, 2.24) | 238 (47.41) |
| ≥3 years and <6 years | 4.16 (3.57, 4.48) | 159 (31.67) |
| ≥6 years | 8.50 (7.15, 10.80) | 105 (20.92) |
| Sex | ||
| Male | 281 (55.98) | |
| Female | 221 (44.02) | |
| County | ||
| Suburban | 305 (60.76) | |
| Urban | 197 (39.24) | |
| One-child family | ||
| Yes | 279 (55.58) | |
| No | 223 (44.42) | |
| Age of mother | 32.75 ± 5.70 | |
| Age of father | 34.63 ± 5.59 | |
| Education level of the mother | ||
| Junior high school or below | 132 (26.29) | |
| Senior high school/college | 210 (41.83) | |
| Undergraduate or above | 160 (31.88) | |
| Education level of the father | ||
| Junior high school or below | 121 (24.10) | |
| Senior high school/college | 223 (44.42) | |
| Undergraduate or above | 158 (31.47) | |
| 2. Diagnostic Information | ||
| Diagnostic age (M) | 12 (6, 24) | |
| Number of outpatient visits | 6 (4, 12) | |
| Number of inpatient visits | 2 (1, 4) | |
| Number of genetic tests | 0.89 (0.60, 1.20) | |
| The location of the diagnostic hospital | ||
| Same district | 10 (1.99) | |
| Same city | 101 (20.12) | |
| Same province | 97 (19.32) | |
| Trans-provincial | 294 (58.57) | |
| 3. Information on direct medical security | ||
| Average monthly household income (10,000 CNY) | 0.60 (0.40, 1.00) | |
| Cost per patient per month | 0.69 (0.33,1.55) | |
| Total cost per patient | 12.27 (7.37,22.22) | |
| Based on medical insurance | 1.20 (0.34, 3.60) |