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. 2022 May 16;19(10):6057. doi: 10.3390/ijerph19106057

Table 1.

Dimensions and items in the instrument.

Dimension Items
Conceptualization 1. I know what a rare disease is
2. I know the categories that the different types of rare diseases fall into
3. I know how prevalent the rare diseases I have dealt with in my school are at a national or international level.
4. When I have had a student with a rare disease in my class, I knew what their main characteristics were
5. I have maintained contact from the school with patient advocacy groups that deal with rare diseases
Legislation 6. I know the educational inclusion legislation in our region
7. I know the content of the most recent education legislation, especially about student educational needs
8. I have read and understand the article in the Spanish Constitution which describes the right to education for all
9. I understand the importance of there being a law aimed at educational inclusion
10. Within my teaching, I believe inclusive education to be important, and therefore the principles of inclusion must be applied in the classroom
Intervention 11. I have had, or still have, a student in my class with a rare disease
12. I have educated myself about the signs and symptoms students may exhibit if they suffer from a rare disease
13. I think the family-school relationship is essential for proper intervention for students with rare diseases
14. I know specific activities to do with these students15. I am able to advise and guide other teachers about activities with these students
Diagnosis 16. I know the warning signs a student with a possible rare disease may present
17. I educate myself and try to contact other diagnosed cases in order to improve the education I give to students with rare diseases that I might encounter as a teacher
18. I know how to clinically diagnose a rare disease
19. I think the relationship between the school and the families is essential in order to be able to properly detect and help an initial diagnosis
20. I am aware of the need for more research to help diagnosis and treatment