Table II.
Characteristics of survey completion, overall and by birth defects program, CH STRONG
| Total | AR | AZ | Atlanta, GA | |||||
|---|---|---|---|---|---|---|---|---|
| n | (%) | n | (%) | n | (%) | n | (%) | |
| Survey type* | ||||||||
| Online | 299 | (18.1) | 92 | (14.6) | 141 | (27.5) | 66 | (12.9) |
| Paper | 1357 | (81.9) | 540 | (85.4) | 371 | (72.5) | 446 | (87.1) |
| Person completing survey* | ||||||||
| Self | 1291 | (78.0) | 469 | (74.2) | 384 | (75.0) | 438 | (85.5) |
| Partner/spouse | 21 | (1.3) | 8 | (1.3) | 7 | (1.4) | 6 | (1.2) |
| Parent | 269 | (16.2) | 119 | (18.8) | 97 | (18.9) | 53 | (10.4) |
| Sibling/other family member | 32 | (1.9) | 18 | (2.8) | 9 | (1.8) | 5 | (1.0) |
| Unrelated caregiver/other | 10 | (0.6) | 4 | (0.6) | 4 | (0.8) | 2 | (0.4) |
| Missing | 33 | (2.0) | 14 | (2.2) | 11 | (2.1) | 8 | (1.6) |
| Reason person cannot complete survey† | ||||||||
| Physically unable | 22 | (6.6) | 13 | (8.7) | 8 | (6.8) | 1 | (1.5) |
| Mentally unable | 212 | (63.9) | 94 | (63.1) | 81 | (69.2) | 37 | (56.1) |
| Unavailable | 72 | (21.7) | 30 | (20.1) | 19 | (16.2) | 23 | (34.9) |
| Not interested | 3 | (0.9) | 1 | (0.9) | 2 | (1.7) | 0 | 0 |
| Not managing their own care | 12 | (3.6) | 4 | (2.7) | 6 | (5.1) | 2 | (3.0) |
| Other | 7 | (2.1) | 4 | (2.7) | 1 | (0.9) | 2 | (3.0) |
| Missing | 4 | (1.2) | 3 | (2.0) | 0 | (0.0) | 1 | (1.5) |
*
χ2 P value < .05 comparing AR; AZ; and Atlanta, GA.
†
Limited to 332 individuals who had information on person completing survey and responded other than “self.”