Table 1.
Sociodemographic characteristics and clinical variables (means and standard deviations provided, unless otherwise noted)
| Variable | Full sample (month 6) |
Follow-up sample (month 30) |
||
|---|---|---|---|---|
| caregiver | PLWD | caregiver | PLWD | |
| N | 320 | 320 | 68 | 68 |
| Age at baseline | 74.40 (31.54) | 77.44 (9.19) | 69.25 (17.76) | 76.89 (8.72) |
| Gender = female, N (%) | 234 (73.12) | 163 (59.94) | 59 (86.76) | 29 (42.65) |
| Race, N (%) | ||||
| American Indian or Alaska Native | 0 (0) | 0 (0) | 0 (0) | 0 (0) |
| Asian | 22 (6.88) | 21 (6.56) | 4 (5.88) | 3 (4.41) |
| Black or African American | 13 (4.06) | 13 (4.06) | 0 (0) | 1 1.47) |
| Native Hawaiian or other Pacific Islander | 2 (0.62) | 1 (0.31) | 0 (0) | 0 (0) |
| White | 249 (77.81) | 248 (77.50) | 56 (82.35) | 57 (83.82) |
| Unknown | 34 (10.62) | 37 (11.56) | 8 (11.76) | 7 10.29) |
| Education | 14.78 (3.44) | 13.34 (4.35) | 14.90 (3.96) | 13.99 (4.82) |
| Relationship to the PLWD = spouse, N (%) | 172 (53.75) | 40 (58.82) | ||
| Caregiver burden (ZBI-12) | 16.19 (9.03) | 22.02 (6.58) | ||
| Caregiver well-being (PHQ-9) | 4.14 (4.42) | 5.62 (4.20) | ||
| Caregiver intervention group = usual care (control), N (%) | 110 (34.38) | 31 (45.59) | ||
| PLWD dementia severity (QDRS) | 14.20 (6.80) | 18.19 (6.65) | ||
| PLWD marital satisfaction (single item from QoL-AD) | 3.05 (0.72) | 2.82 (0.91) | ||
ZBI-12, Zarit Burden Interview; PHQ-9, PLWD Health Questionnaire; QDRS, Quick Dementia Rating Scale; QoL-AD, Quality of Life in Alzheimer's Disease Scale. For clinical variables (i.e., ZBI-12, PHQ-9, QDRS, and QoL-AD), descriptive statistics are reported for each sample from their corresponding timepoint – month 6 or month 30, respectively. All sociodemographic variables are considered constant and are the same at all timepoints (apart from age, which is reported at baseline).