Table 3.

Responses by dimension and level for self-reported EQ-5D-Y by the child and proxy-reported by the primary carer at baseline and 4 months follow-up.

		Baseline		Overall sample		4 month
	Self-completed		Proxy-completed		Self-completed		Proxy-completed
			Mobility N (%)
Level 1	17 (80.95)		11(100)	Level 1	9 (81.81)		11(100)
Level 2	3 (14.29)		0	Level 2	2 (18.18)		0
Level 3	1 (4.76)		0	Level 3	0		0
Pearson’s coefficient		n/a*		Pearson’s coefficient commercial		n/a*
			Looking after oneself
Level 1	15 (71.43)		14 (66.67)	Level 1	7 (33.33)		7 (33.33)
Level 2	5 (23.81)		6 (28.57)	Level 2	2 (18.18)		2 (18.18)
Level 3	1 (4.76)		1 (4.76)	Level 3	2 (18.18)		2 (18.18)
Pearson’s coefficient		0.43		Pearson’s coefficient		0.54
			Doing usual activities N (%)
Level 1	18 (85.71)		12 (57.14)	Level 1	6 (63.63)		5 (45.45)
Level 2	2 (9.52)		5 (23.81)	Level 2	4 (36.36)		4 (36.36)
Level 3	1 (4.76)		4 (19.04)	Level 3	1 (9.09)		2 (18.18)
Pearson’s coefficient		0.09		Pearson’s coefficient		0.54
			Having pain or discomfort N (%)
Level 1	14 (66.67)		17 (80.96)	Level 1	8 (72.73)		9 (81.82)
Level 2	5 (23.81)		4 (19.04)	Level 2	3 (27.27)		2 (18.18)
Level 3	2 (9.52)		0	Level 3	0		0
Pearson’s coefficient		0.63		Pearson’s coefficient		0.76
			Feeling worried, sad or unhappy N (%)
Level 1	9 (42.86)		5 (23.82)	Level 1	6 (54.55)		3 (27.27)
Level 2	8 (38.09)		8 (38.09)	Level 2	3 (27.27)		6 (54.55)
Level 3	4 (19.05)		8 (38.09)	Level 3	2 (18.18)		2 (18.18)
Pearson’s coefficient		0.31		Pearson’s coefficient		0.76

*Non applicable due to low variability.