Table 1.
Demographics of included participants
| Family carers baseline (n = 26) | Family carers follow up (n = 11) | Care home staff baseline (n = 16) | Care home staff follow up (n = 9) | Total sample (n = 42) | |
|---|---|---|---|---|---|
| N (%) | N (%) | N (%) | N (%) | N (%) | |
| Gender | |||||
| Female | 18 (69.2%) | 8 (72.7%) | 13 (81.3%) | 8 (88.9%) | 31 (73.8%) |
| Male | 8 (30.8%) | 3 (27.3%) | 3 (18.8%) | 1 (11.1%) | 11 (26.3%) |
| Ethnicity | |||||
| White British | 22 (84.6%) | 10 (90.9%) | 13 (81.3%) | 7 (77.8%) | 35 (56.5%) |
| White Other | 2 (7.7%) | 1 (9.1%) | 1 (6.3%) | 1 (11.1%) | 3 (4.8%) |
| BAME | 2 (7.7%) | 0 | 1 (6.3%) | 0 | 3 (4.8%) |
| Prefer not to say | 0 | 0 | 1 (6.3%) | 1 (11.1%) | 1 (1.6%) |
| Relationship with PLWD | – | – | – | ||
| Spouse | 9 (34.6%) | 3 (27.3%) | |||
| Partner | 1 (3.8%) | 0 | |||
| Adult child | 16 (61.5) | 8 (72.7%) | |||
| Dementia subtype | – | – | – | ||
| Alzheimer’s disease | 8 (30.8%) | 4 (36.4%0 | |||
| Mixed dementia | 2 (7.7%) | 0 | |||
| Vascular dementia | 4 (15.4%) | 2 (18.2%) | |||
| Lewy Body dementia | 6 (23.1%) | 4 (36.4%) | |||
| Other | 2 (7.7%) | 1 (9.1%) | |||
| Unknown | 4 (15.4%) | 0 | |||
| IMD Quintileb | |||||
| 1 (least disadvantaged) | 11 (42.3%) | 6 (66.7%) | 3 (23.1%) | 2 (28.6%) | 14 (43.8%) |
| 2 | 4 (14.5%) | 2 (22.2%) | 3 (23.1%) | 2 (28.6%) | 2 (21.9%) |
| 3 | 0 | 0 | 3 (23.1%) | 2 (28.6%) | 3 (9.4%) |
| 4 | 3 (11.5%) | 0 | 1 (7.7%) | 0 | 4 (12.5%) |
| 5 (most disadvantaged) | 1 (3.8%) | 1 (11.1%) | 3 (23.1%) | 1 (14.3%) | 4 (12.5%) |
| Job role | – | – | – | ||
| Activity Coordinator | 1 (6.3%) | 0 | |||
| Care home liaison | 1 (6.3%) | 1 (11.1%) | |||
| Care quality | 1 (6.3%) | 0 | |||
| Care assistant | 4 (25.0%) | 3 (33.3%) | |||
| Senior care assistant | 2 (12.5) | 0 | |||
| Night care assistant | 1 (6.3%) | 1 (11.1%) | |||
| Housekeeper | 1 (6.3%) | 1 (11.1%) | |||
| Matron | 1 (6.3%) | 0 | |||
| Manager | 4 (25.0%) | 3 (33.3%) | |||
| Mean (SD), [Range] | |||||
| Agea | 62.3 (±9.5) [42-89] | 61.1 (±5.2) [51-68] | 41.8 (±16.6) [18-62] | 43.3 (±17.2) [21-60] | 54.8 (±15.9) [18-89] |
| Years of education | 17.9 (±2.9) [11-23] | 18.09 (±1.5) [16-20] | 15.7 (±2.7) [11-20] | 16.4 (±2.6) [11-19] | 17.1 (±3.0) [11-23] |
| Care home capacity | 41.5 (±17.4) [18-76] | 38.9 (±18.2) [18-76] | 42.2 (±15.8) [12-64] | 49.7 (±11.6) [36-64] | 41.7 (±16.6) [12-76] |
| Years working in a care home | – | – | 9.3 (±10.6) [1-35] | 7.0 (±11.1) [1-35] | – |
| Years since dementia diagnosis | 6.7 (±3.6) [2-16] | 7.0 (±4.4) [2-16] | – | – | – |
| Years (PLWD) residing in a care home | 2.7 (±2.1) [1-10] | 2.8 (±1.9) [1-7] | – | – | – |
an = 1 care home staff = prefer not to say, bn = 4missing data