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. Author manuscript; available in PMC: 2022 Nov 19.
Published in final edited form as: Risk Manag Insur Rev. 2021 Nov 19;24(4):341–365. doi: 10.1111/rmir.12195

Table 3:

Participant responses to additional demographic questions (N=1616)*

Questions related to employment
Question Answer n % (of total N)
Of those who work part or full time (n=855)
Do you work in the field of science? Yes 119 7.3%
Do you work in a health-related field? Yes 118 7.3%
Do you work in the legal field Yes 68 4.2%
Do you serve in the US military? (active or Vet) Yes 160 9.9%
Questions related to history of genetic testing/genetic conditions
Do you have a diagnosed genetic condition? Yes 184 11.4%
No 1227 75.9%
I don’t know 178 11.0%
Do you have a first-degree relative who has been diagnosed with a genetic condition? Yes 272 16.8%
No 1102 68.2%
I don’t know 220 13.6%
History of genetic testing:
Have you ever had genetic testing through direct-to-consumer testing? Yes 265 16.4%
Have you ever been offered a genetic diagnostic test? Yes 277 17.1%
Have you ever completed a genetic diagnostic test? Yes 146 9.0%
Have you ever been offered a genetic predictive/presymptomatic test? Yes 167 10.3%
Have you ever completed a genetic predictive/presymptomatic test? Yes 76 4.7%
Have you ever been offered a carrier test? Yes 148 9.2%
Have you ever completed a carrier test? Yes 92 5.7%
Have you ever been offered a prenatal test? Yes 129 8.0%
Have you ever completed a prenatal test? Yes 94 5.8%
Questions related to insurance status
Health Insurance
No insurance 180 11.1%
Individual ins. 234 14.5%
Group insurance 676 41.8%
Government ins. 501 31.0%
Have life insurance Yes 892 55.2%
Have LTC insurance Yes 539 33.4%
Have disability income insurance Yes 450 27.8%
Have you ever been denied insurance because of a medical condition? Yes 147 9.1%
No 1339 82.9%
I don’t know 88 5.4%
*

Missing values are refused to answer or other