Table 6.

Extent of sharing.

Process of decision-making	Characteristics of shared process	Extent of sharing identified
		(absent, minimal, moderate, great, full)
Stage 1: Providing	1. Exchange of information
and receiving Information	1.1 Neonatologist informs parents about actual situation, prognosis,	full
	treatment options, and their risk and benefits
	1.2 Parents inform neonatologist about their observations and considerations	great
	2. Helping parents understand
	2.1 By inviting to ask questions	minimal
	2.2 By checking understanding	moderate
Stage 2:	3. Discussing which role parents prefer to have in decision-making	absent
Deliberating	4. Discussing treatment preferences
	4.1. Neonatologist expresses preference.	great
	4.2. Parents express preference.	great
	4.3. Exchanging underlying values and deliberations	minimal
Stage 3: Reaching	5. Making the final decision together.	minimal
a Decision	6. Reaching agreement (eventually) about the most appropriate decision	full

Adapted from de Vos et al. (31).

Absent, no sharing; minimal extent, behavior basically registered; moderate extent, behavior globally registered; great extent, behavior in detail registered; full extent, behavior exhaustingly registered.