Table 1.
Patient demographic, clinical, and treatment characteristics.
| Total (N = 141) | ||
|---|---|---|
| Characteristica | n | % |
|
| ||
| Age, years | ||
| Mean (SD) | 35.6 (7.8) | |
| Median (range) | 35.0 (19.0–69.0) | |
| Sex | ||
| Men | 85 | 60.3% |
| Women | 56 | 39.7% |
| Region | ||
| Northeast | 52 | 36.9% |
| Midwest | 23 | 16.3% |
| South | 48 | 34.0% |
| West | 18 | 12.8% |
| Community | ||
| City | 64 | 45.4% |
| Suburb | 67 | 47.5% |
| Small town or village | 10 | 7.1% |
| Did not disclose | 0 | 0 |
| Education | ||
| Below high school or equivalent | 0 | 0 |
| High school or equivalent | 10 | 7.1% |
| Technical school/training | 10 | 7.1% |
| Some college, university, or other post-secondary education | 30 | 21.3% |
| College, university, or other post-secondary education | 64 | 45.4% |
| Graduate degree | 27 | 19.1% |
| Stage of HL at diagnosis | ||
| Early/Intermediate (stage I or II) | 94 | 66.7% |
| Advanced (stage III or IV) | 47 | 33.3% |
| Time since HL diagnosis, years | ||
| Mean (SD) | 4.1 (9.4) | |
| Median (range) | 1.1 (0.0–39.1) | |
| Source of information on treatment for HL b | ||
| Oncologist | 118 | 83.7% |
| Nurse/other HCP | 110 | 78.0% |
| Family/friends | 68 | 48.2% |
| Other patients/patient advocacy organization | 45 | 31.9% |
| Internet/television/magazine | 89 | 63.1% |
| None | 3 | 2.1% |
| Treatment status | ||
| No treatment decision made | 8 | 5.7% |
| Decision made, not yet started treatment | 32 | 22.7% |
| Currently on treatment | 59 | 41.8% |
| Completed treatment | 42 | 29.8% |
SD: standard deviations; HL: Hodgkin lymphoma; HCP: healthcare professional/provider.
a
n, % except where otherwise indicated.
b
Percentages may sum to more than 100%.