Table 5.
Mean (SD) The Public and Patient Engagement Evaluation Tool item scoresa by responses to background questions (n = 47)
| Level of awarenessb | Frequency of collaborationc | Frequency of interactiond | Stage of user involvmente | |||||
|---|---|---|---|---|---|---|---|---|
| None/some | Mid-high | None/some | Often | Never/some | Often | None/begun | Established | |
| Domain/item | (n = 33) | (n = 13) | (n = 31) | (n = 15) | (n = 32) | (n = 14) | (n = 12) | (n = 34) |
| Policies and Practice | ||||||||
| 6 Explicit strategy | 3.75 (0.76) | 4.08 (0.76) | 3.70 (0.84) | 4.13 (0.52) | 3.77 (0.76) | 4.00 (0.78) | 3.09 (0.94) | 4.09 (0.51)** |
| 7 Strategy - recruitment | 3.50 (0.88) | 4.15 (1.14)* | 3.40 (1.00) | 4.27 (0.70)** | 3.65 (0.95) | 3.79 (1.12) | 3.00 (1.10) | 3.91 (0.87)* |
| 8 Clear resources | 3.68 (1.09) | 3.45 (1.04) | 3.25 (1.07) | 4.15 (0.80)* | 3.75 (0.97) | 3.38 (1.19) | 2.83 (0.98) | 3.78 (1.01) |
| 9 Adequate resources | 3.29 (0.96) | 3.33 (1.16) | 3.13 (0.92) | 3.62 (1.12) | 3.40 (0.91) | 3.09 (1.22) | 3.00 (0.93) | 3.39 (1.03) |
| 10 Reports | 3.28 (1.10) | 3.85 (0.90) | 3.33 (1.11) | 3.67 (0.98) | 3.25 (1.11) | 3.86 (0.86) | 3.10 (0.99) | 3.56 (1.08) |
| Participatory Culture | ||||||||
| 12 Documents | 3.93 (0.75) | 4.08 (1.04) | 3.70 (0.87) | 4.47 (0.52)** | 3.96 (0.64) | 4.00 (1.18) | 3.40 (0.97) | 4.16 (0.72)* |
| 13 Structure | 3.47 (1.07) | 3.54 (1.13) | 3.17 (1.10) | 4.14 (0.66)** | 3.55 (1.06) | 3.36 (1.15) | 3.36 (0.92) | 3.53 (1.14) |
| 15 Clear responsibilities | 3.61 (0.84) | 3.85 (1.14) | 3.41 (0.94) | 4.20 (0.68)** | 3.67 (0.80) | 3.71 (1.20) | 3.20 (1.03) | 3.82 (0.87) |
| 16 Job descriptions | 3.59 (0.71) | 3.18 (1.17) | 3.41 (0.94) | 3.45 (0.93) | 3.59 (0.78) | 3.18 (1.08) | 3.43 (0.79) | 3.43 (0.98) |
| 17 Training/materials | 3.00 (0.91) | 3.22 (1.09) | 2.86 (0.94) | 3.42 (0.90) | 3.08 (0.93) | 3.00 (1.05) | 2.90 (0.74) | 3.13 (1.04) |
| 18 PPE training | 3.42 (1.03) | 3.85 (0.80) | 3.32 (0.98) | 4.00 (0.85)* | 3.50 (0.02) | 3.64 (0.93) | 3.17 (1.12) | 3.68 (0.91) |
| 19 Leaders commited | 3.97 (0.82) | 3.85 (1.21) | 3.87 (0.94) | 4.07 (0.96) | 4.00 (0.86) | 3.79 (1.12) | 3.36 (1.12) | 4.12 (0.81) |
| 20 Reports shared | 3.46 (0.88) | 3.55 (1.13) | 3.52 (0.96) | 3.43 (0.94) | 3.59 (0.89) | 3.25 (1.06) | 3.38 (0.52) | 3.52 (1.03) |
| Influence and Impact | ||||||||
| 22 Organisation | 3.00 (0.58) | 3.54 (0.52)* | 3.00 (0.59) | 3.50 (0.52)* | 3.08 (0.58) | 3.36 (0.63) | 3.00 (0.50) | 3.24 (0.64) |
| 23 Leaders use input | 3.08 (0.63) | 3.64 (0.51)* | 3.04 (0.62) | 3.62 (0.51)* | 3.16 (0.69) | 3.42 (0.52) | 2.89 (0.78) | 3.36 (0.56) |
| 24 Equality | 3.30 (1.09) | 3.69 (0.63) | 3.29 (1.05) | 3.67 (0.82) | 3.31 (1.07) | 3.64 (0.75) | 2.70 (1.16) | 3.64 (0.82)* |
| 25 Voting rights | 2.95 (1.16) | 2.75 (1.49) | 2.89 (1.23) | 2.91 (1.30) | 3.00 (1.11) | 2.70 (1.49) | 2.17 (1.17) | 3.09 (1.20) |
| 26 PPE influence | 2.82 (0.66) | 3.17 (0.39) | 2.86 (0.73) | 3.08 (0.28) | 2.90 (0.70) | 3.00 (0.41) | 2.67 (0.52) | 3.00 (0.61) |
| 27 Management | 2.69 (0.75) | 3.00 (0.47) | 2.83 (0.84) | 2.82 (0.41) | 2.85 (0.80) | 2.80 (0.42) | – | 2.83 (0.65) |
| Collaboration and Common Purpose | ||||||||
| 29 Shared goals | 3.20 (0.52) | 4.10 (0.74) | 3.45 (0.76) | 3.60 (0.70) | 3.45 (0.61) | 3.60 (0.97) | 3.40 (0.55) | 3.52 (0.77) |
| 30 Collaboration | 3.17 (0.78) | 4.00 (0.47) | 3.35 (0.88) | 3.54 (0.66) | 3.38 (0.87) | 3.50 (0.67) | 3.43 (0.79) | 3.42 (0.81) |
| Final thoughts | ||||||||
| 32 Appropriate level | 3.40 (0.90) | 3.46 (1.51) | 3.19 (0.98) | 3.87 (1.19)* | 3.44 (0.88) | 3.36 (1.50) | 2.75 (1.14) | 3.65 (0.98)* |
| 33 Uses resources | 3.21 (0.99) | 3.46 (1.45) | 3.03 (1.05) | 3.80 (1.15)* | 3.28 (0.92) | 3.29 (1.51) | 2.67 (0.99) | 3.50 (1.11)* |
| 34 Overall benefit | 4.03 (0.73) | 4.46 (0.66) | 4.10 (0.79) | 4.27 (0.59) | 4.09 (0.78) | 4.29 (0.61) | 3.67 (0.78) | 4.32 (0.64)* |
a The underlined results do not meet the hypotheses. Asterisks denote statistically significant differences for Mann Whitney U Test: *P < 0.05; **P < 0.01
b How would you rate your level of awareness of the organisation’s overall approach to public and patient engagement: “completely unaware, low level of awareness, neither aware nor unaware, some level of awareness” versus “middle or a high level of awareness”
c How often do you collaborate with employees that lead or support patient involvement: “not at all, infrequently, sometimes” versus “fairly or very frequently”
d How often do you interact with patient representatives associated with the organisation: “not at all, infrequently, sometimes” versus “fairly or very frequently”
e At what stage would you say your organisation is when it comes to routinely engaging the public and/or patients in its activities: “not at all, just beginning”. versus “established or well established”
f 11, 14, 21, 28, 31 and 35 are questions with free text fields