. Author manuscript; available in PMC: 2022 Jun 10.

Published in final edited form as: J Health Psychol. 2018 Jul 11;25(13-14):2106–2117. doi: 10.1177/1359105318785450

Table 1.

Percentages of participants reporting each category (N = 29).

Theme	Subtheme	%	n
Feeling trapped	Having resources and lacking resources	79	23
	Systemic healthcare issues	66	19
	Hope(lessness)	48	14
	Illness-induced distress	48	14
	Desire to end pain	21	6
	Apathy	17	5
Loss of self, loss of others, stigma, and conflict	Lack of understanding and unsolicited advice	72	21
Loss of self, loss of others, stigma, and conflict	Identity	59	17
	Isolation	52	15
	^aBlamed for illness	45	13
	Illness makes others uncomfortable	38	11
	Burden of educating others	28	8

Combined with identity during later thematic development.