Table 3. Comparison of pre- and post-surgery characteristics for participants who completed and did not complete the Y1 post-surgery questionnaire.
| Completed Year 1 post-surgery questionnaire | Did not complete Year 1 post-surgery questionnaire | ||
|---|---|---|---|
| N = 100 | N = 24 | p-valuea | |
| Pre-Surgery Characteristics b | |||
| Age (years) | |||
| Mean (SD) | 16.8 (2.3) | 16.4 (2.4) | 0.52 |
| Race, N(%) | |||
| White | 94 (94.0) | 20 (83.3) | 0.10 |
| Other/Unknown | 6 (6.0) | 4 (16.7) | |
| Ethnicity, N(%) | |||
| Hispanic | 95 (95.0) | 22 (95.7) | 0.99 |
| Non-Hispanic | 5 (5.0) | 1 (4.3) | |
| Hormone use, N(%) | |||
| No | 8 (8.0) | 3 (12.5) | 0.44 |
| Yes | 92 (92.0) | 21 (87.5) | |
| Pain medication use, N(%) | |||
| No | 65 (65.0) | 15 (62.5) | 0.82 |
| Yes | 35 (35.0) | 9 (37.5) | |
| rASRM stage, N(%) | |||
| Stage I/II | 98 (98.0) | 24 (100) | 0.99 |
| Stage III/IV | 1 (2.0) | 0 (0) | |
| Endometriosis surgical sub-phenotype, N(%) | |||
| Superficial peritoneal lesion(s) only | 99 (99.0) | 24 (0) | 0.99 |
| Deep infiltrating | 1 (1.0) | 0 (0) | |
| Age at symptom onset (years)c | |||
| Mean (SD) | 13.5 (2.2) | 13.1 (2.1) | 0.46 |
| Time between symptom onset and diagnosis (years)c | |||
| Mean (SD) | 3.1 (2.1) | 2.8 (2.0) | 0.63 |
| Type of endometriosis surgery, N(%) | |||
| Second or subsequent surgery | 13 (13.0) | 2 (8.3) | 0.73 |
| First / Diagnostic surgery | 87 (87.0) | 22 (91.7) | |
| SF-12 Mental health componentd | |||
| Mean (SD) | 43.7 (12.2) | 41.7 (11.2) | 0.49 |
| SF-12 Physical health componentd | |||
| Mean (SD) | 44.7 (10.8) | 44.6 (9.9) | 0.96 |
| Acyclic pelvic pain in last 3 months, N(%)e | |||
| No | 35 (35.0) | 6 (27.3) | 0.47 |
| Yes | 65 (65.0) | 16 (72.7) | |
| Severity of acyclic pelvic pain in last 3 monthsf | |||
| Mean (SD) | 7.6 (2.1) | 7.8 (1.9) | 0.70 |
| Frequency of acyclic pelvic pain in last 3 months, N(%)f | |||
| <1 day/month | 4 (6.9) | 2 (11.8) | 0.93 |
| Monthly but not weekly | 15 (25.9) | 4 (23.5) | |
| Weekly | 21 (36.2) | 6 (35.3) | |
| Daily | 18 (31.0) | 5 (29.4) | |
| Acyclic pelvic pain interfered with work/school, N(%)f | |||
| No | 21 (35.0) | 3 (17.6) | 0.24 |
| Yes | 39 (65.0) | 14 (82.4) | |
| Acyclic pelvic pain interfered with daily activities at home, N(%)f | |||
| No | 24 (40.7) | 5 (29.4) | 0.57 |
| Yes | 35 (59.3) | 12 (70.6) | |
| Reported continuous hormone use in last 3 months, N(%) | |||
| No | 73 (73.0) | 15 (62.5) | 0.32 |
| Yes | 27 (27.0) | 9 (37.5) | |
| Severity of period pain in last 12 months, N(%)g | |||
| Mean (SD) | 8.5 (1.5) | 7.9 (2.5) | 0.27 |
| Usual frequency of period pain in last 12 months, N(%)g | |||
| Occasionally | 0 (0) | 1 (9.1) | 0.11 |
| Often | 4 (6.7) | 1 (9.1) | |
| Usually | 10 (16.7) | 0 (0) | |
| Always | 46 (76.7) | 9 (81.8) | |
| Maximum severity of acyclic pelvic pain and dysmenorrheah | |||
| Mean (SD) | 8.3 (1.8) | 8.1 (2.2) | 0.75 |
| Post-surgery characteristics i | |||
| Hormone use, N(%) | |||
| No | 1 (1.0) | 2 (8.3) | 0.10 |
| Yes | 99 (99.0) | 22 (91.7) | |
| Pain medication use, N(%) | |||
| No | 32 (32.0) | 5 (20.8) | 0.33 |
| Yes | 68 (68.0) | 19 (79.2) | |
| SF-12 Mental health componentj | |||
| Mean (SD) | 46.9 (11.4) | 46.8 (10.7) | 0.97 |
| SF-12 Physical health componentj | |||
| Mean (SD) | 48.7 (9.6) | 43.2 (12.5) | 0.02 |
| Maximum severity of acyclic pelvic pain and dysmenorrheak | |||
| Mean (SD) | 5.4 (3.3) | 6.4 (3.4) | 0.22 |
aP-values calculated using T-tests and Fisher’s Exact tests
bPre-surgery characteristics reported on the pre-surgery questionnaire or recorded at endometriosis-related surgery
cMissing data for 3 Year 1 non-completers
dMissing data for 3 Year 1 completers and 3 Year 1 non-completers
eMissing data for 1 Year 1 non-completer
fRestricted to participants who reported acyclic pelvic pain in the last 3 months. Note: Missing data for acyclic pelvic pain severity for 2 Year 1 completers and 1 Year 1 non-completer, missing data for acyclic pelvic pain frequency for 7 Year 1 completers, missing data for acyclic pelvic pain interfering with work/school for 5 Year 1 completers, and missing data for acyclic pelvic pain interfering with daily activities for 6 Year 1 completers
gRestricted to 73 Year 1 completers and 15 Year 1 non-completers who did not report continuous hormone use in the last 3 months. Note: Missing data for period pain severity for 2 Year 1 completers and missing data for period pain frequency for 13 Y1 completers and 4 Year 1 non-completers
hCalculated as the maximum severity of either acyclic pelvic pain in the last 3 months or period pain in the last 12 months. Includes 98 Year 1 completers and 21 Year 1 non-completers
iObtained from the post-surgery questionnaire completed between 6 and 26 weeks after surgery
jMissing data for 5 Year 1 completers and 1 Year 1 non-completers
kCalculated as the maximum severity of either acyclic pelvic pain in the last 3 months or period pain in the last 12 months. Includes 99 Year 1 completers and 24 Year 1 non-completers