TABLE 1.
All supported patients by diagnosis and age range at acceptance
| Cancer diagnosis | Number | % of total | Acceptance age range | Mean age at acceptance (y/mo) |
|---|---|---|---|---|
| Adrenocortical carcinoma | 3 | 2% | 1‐9 y | 4 y, 8 mo |
| Alveolar rhabdomyosarcoma | 3 | 2% | 6‐12 y | 8 y, 4 mo |
| Anaplastic ependymoma | 1 | 1% | – | 3 |
| Angiosarcoma | 1 | 1% | – | 7 mo |
| Aplastic ependymoma | 1 | 1% | – | 3 |
| Atypical teratoid rhabdoid tumor | 6 | 3% | 1‐4 y | 2 |
| Burkitt's leukemia | 1 | 1% | – | 5 |
| Cardiac myxofibrosarcoma | 1 | 1% | – | 5 |
| Cardiac sarcoma | 1 | 1% | – | 10 |
| Choloangiocarcinom | 1 | 1% | – | 13 |
| Chondroblastic osteosarcoma | 1 | 1% | – | 14 |
| Choroid plexus neoplasm | 2 | 1% | 3‐6 y | 4 y, 6 mo |
| Colorectal carcinoma | 1 | 1% | – | 15 |
| Craniopharyngioma | 1 | 1% | – | 9 |
| Desmoplastic small cell tumor | 1 | 1% | – | 13 |
| Diffuse intrinsic pontine glioma | 13 | 7% | 3‐11 y | 5 y, 9 mo |
| Diffuse midline glioma | 1 | 1% | – | 5 |
| Disseminated glioneuronal tumor | 1 | 1% | – | 4 |
| Embryonal pelvic rhabdomyosarcoma | 1 | 1% | – | 7 mo |
| Embryonal rhabdomyosarcoma | 5 | 3% | 4 mo‐5 y | 1 y, 10 mo |
| Embryonal tumor with multilayered rosettes | 4 | 2% | 2‐4 y | 2 y, 9 mo |
| Ependymoma | 7 | 4% | 1–9 y | 5 y, 3 mo |
| Epithelioid sarcoma | 1 | 1% | – | 9 |
| Ewings sarcoma | 19 | 10% | 4‐14 y | 10 y, 3 mo |
| Gamma/delta T‐cell leukemia | 1 | 1% | – | 2 |
| Germ cell tumor | 1 | 1% | – | 5 |
| Glioneuronal tumor | 1 | 1% | – | 10 |
| Hepatic angiosarcoma | 1 | 1% | – | 3 |
| Hepatoblastoma | 5 | 3% | 1–9 y | 3 y, 7 mo |
| Glioma | 2 | 1% | 9‐12 y | 10 y, 6 mo |
| Histiocytic sarcoma | 1 | 1% | – | 13 |
| Juvenile myelomonocytic leukemia | 3 | 2% | 1‐3 y | 2 |
| Langerhans cell histiocytosis | 2 | 1% | 2‐10 y | 6 |
| Malignant peripheral nerve sheath tumor | 1 | 1% | – | 16 |
| Malignant rhabdoid tumor | 2 | 1% | 10 mo‐1 y | 11 mo |
| Medulloblastoma | 19 | 10% | 9 mo‐12 y | 6 y, 8 mo |
| Melanotic neuroectodermal tumor | 1 | 1% | – | 2 |
| Metastatic alveolar rhabdomyosarcoma | 2 | 1% | 7 mo‐3 y | 1 y, 9 mo |
| Metastatic osteosarcoma | 1 | 1% | – | 13 |
| Muco‐epidermoid carcinoma | 1 | 1% | – | 9 |
| Neuroblastoma | 2 | 1% | 1‐11 y | 6 |
| Orbital rhabdomyosarcoma | 1 | 1% | – | 8 |
| Osteosarcoma | 14 | 7% | 4‐15 y | 10 y, 9 mo |
| Pilocytic astrocytoma | 1 | 1% | – | 5 |
| Pineal anlage tumor | 1 | 1% | – | 3 |
| Pineoblastoma | 1 | 1% | – | 3 |
| Primitive neuro ectodermal tumor | 2 | 1% | 1‐10 y | 5 y, 6 mo |
| Relapsed Wilm's tumor | 1 | 1% | – | 5 |
| Relapsed ependymoma | 1 | 1% | – | 5 |
| Relapsed medulloblastoma | 1 | 1% | – | 4 |
| Relapsed rhabdomyosarcoma | 1 | 1% | – | 10 |
| Retinoblastomas | 10 | 5% | 6 mo‐4 y | 1 y, 11 mo |
| Rhabdoid tumor | 7 | 4% | 6 mo‐2 y | 1 y, 2 mo |
| Rhabdomyosarcoma | 12 | 6% | 5 mo‐13 y | 6 y, 4 mo |
| Steroid cell tumor | 1 | 1% | – | 8 |
| Synovial sarcoma | 1 | 1% | – | 15 |
| Thalmic glioma | 1 | 1% | – | 5 |
| Wilms tumor | 18 | 9% | 2‐12 y | 4 y, 3 mo |
| Total | 197 | 100% | 6 y |